Norway

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Norway

Demographics[edit | edit source]

Research[edit | edit source]

  • 2014, Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway 2008-2012[1](Full Text)
  • 2016, Comorbidities treated in primary care in children with chronic fatigue syndrome/myalgic encephalomyelitis: A nationwide registry linkage study from Norway[2](Full text)
  • 2017, From good health to illness with post-infectious fatigue syndrome: a qualitative study of adults’ experiences of the illness trajectory: a qualitative study of adults’ experiences of the illness trajectory[3](Full Text)

Researchers[edit | edit source]

Medical guidelines[edit | edit source]

National health department[edit | edit source]

CBT/GET[edit | edit source]

Social security and disability benefits[edit | edit source]

Access to care[edit | edit source]

How many hospitals and doctors, which diagnose and treat M E (estimate):

Rehabilitation offers for ME sufferers:

Government Apology to ME/CFS Patients[edit | edit source]

Patient groups[edit | edit source]

Notable patients[edit | edit source]

Notable advocates and allies[edit | edit source]

Clinicians[edit | edit source]

Clinics[edit | edit source]

ME/CFS-senteret ved Oslo universitetssykehus

Links[edit | edit source]

See also[edit | edit source]


References[edit | edit source]

  1. Bakken, Inger Johanne; Tveito, Kari; Gunnes, Nina; Ghaderi, Sara; Stoltenberg, Camilla; Trogstad, Lill; H åberg, Siri Eldevik; Magnus, Per (Oct 2014). "Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway 2008-2012". BMC Medicine. 12 (1). doi:10.1186/s12916-014-0167-5. ISSN 1741-7015. PMID 25274261. 
  2. Bakken, IJ; Tveito, K; Aaberg, KM; Ghaderi, S; Gunnes, N; Trogstad, L; Magnus, P; Stoltenberg, C; Haberg, SE (2016), "Comorbidities treated in primary care in children with chronic fatigue syndrome/myalgic encephalomyelitis: A nationwide registry linkage study from Norway", BMC Family Practice, 17 (1): 128, doi:10.1186/s12875-016-0527-7, PMID 27590471 
  3. Stormorken, E., Jason, L. A., & Kirkevold, M. (2017). From good health to illness with post-infectious fatigue syndrome: a qualitative study of adults’ experiences of the illness trajectory. BMC Family Practice, 18, 49. http://doi.org/10.1186/s12875-017-0614-4
  4. Norsk rikskringkasting (NRK, Norwegian Broadcast), Jeg lager kunst på de gode dagene, https://www.nrk.no/kultur/_-jeg-lager-kunst-pa-de-gode-dagene-1.12357129

chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.