MEpedia suggestions

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This page lists suggestions for improvements or additions to MEpedia.

PLEASE if at all possible, create/edit a relevant article yourself (see How to contribute), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click Edit below (next to the heading "Suggestions"), add your suggestion to the end, and then click Save page.

Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).

If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., User:Brettz9/To-dos) and then add the code [[Category:User to-dos]] to your subpage article. It will then show up at Category:User to-dos.

Suggestions - High Priority[edit]

When a task is complete move it to the COMPLETED section at the bottom of the page

Suggestions - Five Minute Tasks[edit]

When a task is complete move it to the COMPLETED section at the bottom of the page


PACE Trial & related[edit]

'To make page with all blogs from patients for PACE trial and link to original PACE page

http://www.healthrising.org/blog/2016/08/18/federal-report-says-almost-no-evidence-cbtget-work-chronic-fatigue-syndrome-mecfs/ and and


Tribunal stuff

  • Document AHRQ update on London criteria and PACE results and

http://www.meaction.net/2016/08/18/ahrq-agrees-get-useless-cbt-ineffective/


Original stuff


Done


http://f1000research.com/articles/5-781/v1 https://twitter.com/postersandme/status/766003841590554625/photo/1

http://www.twitlonger.com/show/n_1sp0pjo https://twitter.com/chezboo2/status/765540769016848384/photo/1 https://twitter.com/cheshfr/status/765606851262222341/photo/1

http://www.meaction.net/2016/09/05/lancet-rejects-scientists-pace-letter/*

http://www.meresearch.org.uk/news/ahrq-review/

https://peterkempblog.wordpress.com/2016/09/10/pace-trial-participants-were-they-exploited/

http://www.foxnews.com/health/2011/02/18/pushing-limits-help-chronic-fatigue-patients.html 

Suggestions[edit]

When a task is complete move it to the COMPLETED section at the bottom of the page

Implement acronyms as a category[edit]

http://me-pedia.org/wiki/List_of_acronyms

I don't think this is necessary? The current abbreviations page serves its function perfectly, as it is alphabetized, linked and has explanatory notes. A category seems like an unnecessary duplication. --Samsara (talk) 02:18, 3 November 2016 (PDT)

Historical articles[edit]

Add these articles:

There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/

Stem cell treatments[edit]

Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. Brettz9 (talk) 11:37, 19 January 2016 (PST)

Treatments[edit]

A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the List of treatments page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --JenB (talk) 09:24, 11 December 2015 (PST)

Basic biochemistry[edit]

Infectious disease[edit]

New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the Herpesvirus page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both CFS and other diseases, especially those involving B cells and the possible infection of nervous tissue. --JenB (talk) 08:38, 16 March 2016 (PDT)

Completed[edit]

When a task is complete move it HERE

https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf

PACE Trial & related[edit]


The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history