Social media

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Social media has become important for advocacy, informational exchange, and support regarding ME/CFS, particularly such websites as Facebook and Twitter.

Facebook groups[edit | edit source]

As of March 2019, there were over 70 different Facebook groups devoted to myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS). These groups were based on common interests, perspectives, geographical location, age, gender, comorbidities, symptom severity, and other factors. Membership in these groups range from just a couple hundred to over 20,000 people.[1]

Reddit[edit | edit source]

Relevant subreddits include CFS Reddit and MEAction Reddit.

References[edit | edit source]

  1. "Facebook Group Search 'CFS'". Retrieved Mar 29, 2019. 

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.