From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

The degree of disability experienced by ME/CFS patients covers a wide range, but can be very severe.

Statistics[edit | edit source]

  • 54% of ME/CFS patients reported being unemployed[1]:260-261
  • 25% of ME/CFS patients are housebound or bedbound at some point in their illness[2]
  • A number of studies and patient surveys have found patients with ME/CFS to have, on average, a lower quality of life, to be more severely disabled, and to have more comorbid chronic illnesses than patients with any of the other chronic illnesses used for comparison. (Neurological Alliance, 2019[3]; Hvidberg et al. 2015[4]; Nacul et al. 2011[5])

Evaluation of Disability[edit | edit source]

United States

BOX C-1[1]:258-259

Social Security Administration Evaluation of Disability

Medical evidence[edit | edit source]

For the purposes of Social Security Disability evaluation, in addition to a diagnosis of ME/CFS that meets the Fukuda case definition, one or more of the following medical signs clinically documented over a period of at least 6 consecutive months is required to establish the existence of a medically determinable impairment (MDI) of CFS:[1]:260-261

Laboratory test results[edit | edit source]

Specific laboratory findings are not well established for ME/CFS. However, certain laboratory findings may support the finding of an MDI in people with ME/CFS even in the absence of the medical evidence listed above. It is not unusual to find standard laboratory tests in the normal range for many patients with ME/CFS, and SSA advises that such tests should not be relied upon to the exclusion of all other clinical evidence in decisions regarding the presence and severity of an MDI. The following laboratory findings establish the existence of an MDI in people with ME/CFS:[1]:260-261

New laboratory and clinical evidence may emerge with continued research in ME/CFS. According to SSA, these findings may be considered, in conjunction with laboratory findings discussed above, in the assessment of an MDI. Depending on the type of assessment, ongoing mental limitations[6] or neurocognitive manifestations[7] documented by a mental status examination or psychological testing may be considered medical signs or laboratory findings.

SOURCE: Social Security Ruling, 2014.[1]

Notable studies[edit | edit source]

  • 2019, Work Rehabilitation and Medical Retirement for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients. A Review and Appraisal of Diagnostic Strategies[8] - (Full text)
People with ME/CFS often feel under pressure to continue working when they first become ill or when their symptoms worsen. Unfortunately, trying to push through this illness is counterproductive, potentially causing longer sickness absences and slower recovery.
  • 2021, CFS patients remain severely disabled after specialist treatment with CBT in the UK[9] - (Full text)

See also[edit | edit source]

Departments of Disability and Benefits


Learn more[edit | edit source]

References[edit | edit source]

  1. 1.0 1.1 1.2 1.3 1.4 1.5 1.6 "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness". National Academies of Science. 2015. Retrieved February 20, 2019.
  2. "Myalgic Encelphalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Key Facts" (PDF). National Academies of Science. 2015.
  3. The Neurological Alliance (2019), Neuro Patience. Still waiting for improvements in treatment and care. (PDF), retrieved September 27, 2021
  4. Hvidberg, Michael Falk; Brinth, Louise Schouborg; Olesen, Anne V; Petersen, Karin D; Ehlers, Lars (July 6, 2015). "The Health-Related Quality of Life for Patients with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)". PLoS One. 10 (7): e0132421. doi:10.1371/journal.pone.0132421.
  5. Nacul, Luis C; Lacerda, Eliana M; Campion, Peter; Pheby, Derek; Drachler, Maria de L; Leite, José C; Poland, Fiona; Howe, Amanda; Fayyaz, Shagufta (May 27, 2011). "The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers". BMC Public Health. 11 (1): 402. doi:10.1186/1471-2458-11-402. ISSN 1471-2458. PMC 3123211. PMID 21619607.
  6. "Eiligibility for Disability Benefits and Mental Symptoms & Limitations". James Disability Law. Retrieved February 22, 2019.
  7. "Medical Definition of NEUROCOGNITIVE". Merrian-Webster Dictionary. Retrieved February 22, 2019.
  8. Vink, Mark; Vink-Niese, Alexandra (September 20, 2019). "Work Rehabilitation and Medical Retirement for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients. A Review and Appraisal of Diagnostic Strategies". Diagnostics. 9 (4): 124. doi:10.3390/diagnostics9040124. ISSN 2075-4418.
  9. Vink, Mark; Vink-Niese, Alexandra (May 27, 2021). "CFS patients remain severely disabled after specialist treatment with CBT in the UK". Journal of the Royal Society of Medicine. 114 (6): 284–284. doi:10.1177/01410768211013447. ISSN 0141-0768. PMC 8212546. PMID 34042529.
  10. "'I've been treated like a liar and a fake'". BBC News. February 21, 2018. Retrieved February 22, 2019.