All-Party Parliamentary Group on Myalgic Encephalomyelitis

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The All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) is a British group of backbench members of parliament, from all political parties and from Houses of Commons and Lords, who meet to discuss ME.[1]

Carol Monaghan MP revived the APPG on ME in February 2020; it had previously closed in 2017.[2]

APPG Focus[edit | edit source]

The APPG for ME agreed to focus on the following key topics:

In addition:

  • Producing a key report on issues impacting ME sufferers[3]

APPG members[edit | edit source]

The first meeting since the 2019 general election was held in February 2020, and arranged by Carol Monaghan MP.[2]

Officer's Roles[edit | edit source]

The following people were also reported as attending the first meeting:

Other members[edit | edit source]

APPG members who did not attend the first meeting include:

A list of APPG members has not been published yet.

Previous APPG members[edit | edit source]

All APPGs need to be restarted parliament is dissolved for a general election, and must be restarted after; meaning that the groups change after every election.[7]

The previous group, which ended in 2017,[1] was co-chaired by Sir Peter Bottomley MP and Lady Countess of Mar. The group was supported by Action for ME, the ME Association, ME Research UK, Association of Young People with ME, Tymes Trust, the ME Trust, reMEmber, the 25% ME Group, Invest in ME, and Blue Ribbon Awareness for ME (BRAME).[8] Secretariat was provided by Action for ME and the ME Association.[9]

Publications & Announcements[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) - A British group of backbench members of parliament, from all political parties and from Houses of Commons and Lords, who meet to discuss ME.

All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) - A British group of backbench members of parliament, from all political parties and from Houses of Commons and Lords, who meet to discuss ME.

single nucleotide polymorphism (SNP) - A single nucleotide polymorphism (SNP, pronounced "snip") is a potential genetic mutation that occurs in a single spot in the human genome; a difference in a single DNA building block. SNPs are often represented by an "rs" number, such as "rs53576".

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.