Blue Ribbon Awareness for ME

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

The Blue Ribbon for the Awareness of M.E. (BRAME) is a voluntary organisation for people with Myalgic Encephalomyelitis in the UK. BRAME was founded by, and is run by, Tanya Harrison, who has severe Myalgic Encephalomyelitis, and Christine Harrison, her 24/7 carer.[1][2]

Aims[edit | edit source]

  • To create awareness and understanding that ME/CFS is a very real, and for many, a very debilitating illness.
  • To publicise and create awareness of the severity and widespread nature of the illness.
  • To publicise and create awareness of the consequences of living with ME/CFS for the sufferer, carer and the whole family unit and to highlight their needs.
  • To generally offer support, understanding and friendship to those affected by ME/CFS.
  • Through publicity reach as many sufferers and carers of ME/CFS as possible, as they often feel quite isolated by the debilitation of the ME/CFS, and the scepticism they often face.
  • To stimulate discussion and subsequent understanding of ME/CFS.
  • To increase awareness of ME/CFS amongst
    • members of the medical profession
    • educationalists
    • employers
    • politicians
    • society in general
  • To promote the international links with individuals, groups, medical professionals and researchers in ME/CFS or ME/CFS linked illnesses.
  • To support, help and develop the BRAME campaign around the world using the Blue Ribbon and BRAME enamel badge as universal symbols to create a greater awareness and understanding of ME/CFS.[1]

Services[edit | edit source]

Notable people[edit | edit source]

Patrons[edit | edit source]

Medical advisors[edit | edit source]

Advocacy[edit | edit source]

Tanya Harrison was part of the NICE guidelines review in 2007. She resigned from the review committee shortly before the controversial guidelines were published, stating she felt unable to agree with them.[3]

Research/Notable studies[edit | edit source]

History[edit | edit source]

BRAME was founded in 1995.

Funding[edit | edit source]

Interviews and articles[edit | edit source]

Online presence[edit | edit source]

  • Website
  • Twitter
  • Facebook (group/page)
  • YouTube channel
  • Instagram
  • LinkedIn

See also[edit | edit source]

Learn more[edit | edit source]

  • Wikipedia

References[edit | edit source]

  1. 1.0 1.1 "About BRAME". Retrieved October 21, 2018.
  2. "BRAME Home". Retrieved October 21, 2018.
  3. Harrison, Tanya (2008). "Personal response to the NICE guidelines, BRAME".