25 Percent ME Group
Aims[edit | edit source]
The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.
Funding[edit | edit source]
The group relies on funding through individual donations. It is a registered charity (#SC034265) with the Scottish Charity Regulator.
Notable people[edit | edit source]
- Dr Byron Hyde is patron
- Dr Nigel Speight is medical advisor
- Dr Vance Spence is scientific advisor
- Prof Malcolm Hooper is MCS scientific advisor
- Dr Betty Dowsett was formerly medical advisor
History[edit | edit source]
PACE Trial[edit | edit source]
Notable articles[edit | edit source]
- KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING - Preventing the unnecessary forced mental health sectioning of severely ill patients - The Grace Charity for M.E. with 25% ME Group
- Severe ME symptoms
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- "25% M.E. Group - Supporting Those With Severe M.E." 25% M.E. Group. Retrieved Jul 16, 2019.
- Open Letter - TO: QMUL RE: PACE Trial DATE: February 10, 2016
- The Grace Charity for M.E.; 25% ME Group (Jan 2019). "KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING". Retrieved Jul 12, 2019.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.