25 Percent ME Group
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
The 25% ME Group is a UK support group set up to care for the most severely affected ME patients.[1] They also founded the annual Severe ME Awareness Day on August 8th.[2]
Aims
The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.[3]
Funding
The group relies on funding through individual donations.[4] It is a registered charity (#SC034265) with the Scottish Charity Regulator.
Notable people
- Dr Byron Hyde is patron
- Dr Nigel Speight is medical advisor
- Dr Vance Spence is scientific advisor
- Prof Malcolm Hooper is MCS scientific advisor
- Dr Betty Dowsett was formerly medical advisor[5]
History
PACE Trial
On February 10, 2016 an open letter was submitted to Queen Mary University London requesting compliance with Freedom of Information request for release of PACE trial data.[6]
Notable articles
- KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING[7] - Preventing the unnecessary forced mental health sectioning of severely ill patients - The Grace Charity for M.E. with 25% ME Group
- Severe ME symptoms- The 25% ME Group
Online presence
- Website
- Address:
- PO Box 8620
- Troon
- Ayrshire
- KA10 9BL
See also
References
- ↑ "25% M.E. Group - Supporting Those With Severe M.E." 25% M.E. Group. Retrieved July 16, 2019.
- ↑ "Severe Myalgic Encephalomyelitis Day of Understanding and Rememberance Day (8th August)". 25% ME Group.
- ↑ "About Us". 25% M.E. Group. Retrieved October 31, 2020.
- ↑ "Fundraising". 25% M.E. Group. Retrieved March 1, 2021.
- ↑ "Patrons, Trustees, Advisers". 25% M.E. Group. Retrieved March 1, 2021.
- ↑ Open Letter - TO: QMUL RE: PACE Trial DATE: February 10, 2016
- ↑ The Grace Charity for M.E.; 25% ME Group (January 2019). "KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING". Retrieved July 12, 2019.
