From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

ReMEmber, The Chronic Fatigue Society aim to help people with ME/CFS live healthy and happy lives by giving information & advice, campaigning for better biomedical services & supporting biomedical research. ReMEmberCFS is a UK charity based in Sussex

Aims[edit | edit source]

reMEmber is a registered charity dedicated to securing good services (particularly biomedical services) for people who have CFS/ME.

To Improve understanding of the condition by organising professional presentations for patients and carers. Giving ongoing support and information to patients, carers and professionals.

They belong to Forward ME, a coalition of ME charities.

Services[edit | edit source]

They give help and advice to patients, families and carers via meetings, a website, telephone and e-mail.

They also hold Information and social events and provide a 24 page printed newsletter (which is posted/shipped to you) issued three times a year

They were awarded the Queen’s Award for Voluntary Service for our works in the community to help people who suffer from the chronic illness ME in Mid Sussex. This is the highest award a voluntary group can receive in the UK.

Notable people[edit | edit source]

Staff[edit | edit source]

Janice Kent - Director

William Kent - Secretary

Derek Hiscoke - Treasurer

Professor Roger Homan - Ethical Adviser

Patrons[edit | edit source]

The Countess of Mar

Anthony Pinching

Baron Dholakia OBE DL

Lord Flight

Judy Parfitt

Gwyneth Powell

Medical advisors[edit | edit source]

Dr Amolak Bansal

Professor Kevin Davies

Professor Basant Puri

Dr Karen Walker-Bone

Dr. Willy Weir

Research/Notable studies[edit | edit source]

History[edit | edit source]

The Director was a member of the 2002 Chief Medical Officer’s Working Group on CFS/ME which produced best practice guidance for professionals, patients and carers. The Director is also a member of the Horsham and Mid Sussex Clinical Commissioning Group.

Their campaigning and meeting at Hassocks in June 2003 “Meet the Decision Makers”with Howard Flight MP, Mid Sussex Primary Care Trust and the independent patient groups of Sussex, led to a CFS/ME service being commissioned for the whole of Sussex.

Funding[edit | edit source]

Interviews and articles[edit | edit source]

Online presence[edit | edit source]

  • Website
  • Twitter
  • Facebook (group/page)
  • YouTube channel
  • Instagram
  • LinkedIn

See also[edit | edit source]

Learn more[edit | edit source]

  • Wikipedia

References[edit | edit source]