ReMEmber, The Chronic Fatigue Society aim to help people with ME/CFS live healthy and happy lives by giving information & advice, campaigning for better biomedical services & supporting biomedical research. ReMEmberCFS is a UK charity based in Sussex
Aims[edit | edit source]
reMEmber is a registered charity dedicated to securing good services (particularly biomedical services) for people who have CFS/ME.
To Improve understanding of the condition by organising professional presentations for patients and carers. Giving ongoing support and information to patients, carers and professionals.
They belong to Forward ME, a coalition of ME charities.
Services[edit | edit source]
They give help and advice to patients, families and carers via meetings, a website, telephone and e-mail.
They also hold Information and social events and provide a 24 page printed newsletter (which is posted/shipped to you) issued three times a year
They were awarded the Queen’s Award for Voluntary Service for our works in the community to help people who suffer from the chronic illness ME in Mid Sussex. This is the highest award a voluntary group can receive in the UK.
Notable people[edit | edit source]
Staff[edit | edit source]
Janice Kent - Director
William Kent - Secretary
Derek Hiscoke - Treasurer
Professor Roger Homan - Ethical Adviser
Patrons[edit | edit source]
The Countess of Mar
Baron Dholakia OBE DL
Medical advisors[edit | edit source]
Dr Amolak Bansal
Professor Kevin Davies
Professor Basant Puri
Dr Karen Walker-Bone
Dr. Willy Weir
Research/Notable studies[edit | edit source]
History[edit | edit source]
The Director was a member of the 2002 Chief Medical Officer’s Working Group on CFS/ME which produced best practice guidance for professionals, patients and carers. The Director is also a member of the Horsham and Mid Sussex Clinical Commissioning Group.
Their campaigning and meeting at Hassocks in June 2003 “Meet the Decision Makers”with Howard Flight MP, Mid Sussex Primary Care Trust and the independent patient groups of Sussex, led to a CFS/ME service being commissioned for the whole of Sussex.
Funding[edit | edit source]
Interviews and articles[edit | edit source]
Online presence[edit | edit source]
- Facebook (group/page)
- YouTube channel
See also[edit | edit source]
Learn more[edit | edit source]