ME/CFS Epidemiology and Genomics Alliance

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

M.E./CFS Epidemiology and Genomics Alliance (MEGA) is a group of 15 British researchers supported by several UK patient charities which is applying for millions of ME/CFS research funding.[1] MEGA's funding application to the Wellcome Trust was turned down in 2017, and the MEGA blog has not been updated since.[2]

Notable people[edit | edit source]

Criticism[edit | edit source]

MEGA has been criticized for arranging a patient petition to show support for its research aims, which is not the way research projects are usually planned or funded.[3] The Opposing MEGA group was started to directly oppose the funding of the MEGA project, and has raised concerns about the researchers involved, including their close ties to the extremely controversial PACE trial. There was also concern about patient inclusion & selection with plans to recruit for blood and urine samples from the NHS fatigue clinics and the Q & A saying that  “Patients with CFS/ME will be identified by clinicians in the NHS clinics. The clinicians will be asked to identify patients they judge from NICE criteria to have CFS/ME“ [4]

See also[edit | edit source]

References[edit | edit source]

  1. MEGA. "Biographies of MEGA Team Members". Retrieved January 20, 2019.
  2. MEGA. "ME/CFS Epidemiology and Genomics Alliance – Understanding the biology of ME/CFS". Retrieved January 20, 2019.
  3. Opposing MEGA. "Opposing MEGA (OMEGA)". OMEGA. Retrieved January 20, 2019.
  4. "MEGA Questions and Answers". Retrieved September 3, 2021.