Education[edit | edit source]
BSc Joint Honours, Sociology & Social Work; Diploma in Social Work (DipSW) 1994 – 1998
Awards[edit | edit source]
- 2018, Voted to "West Women of the Year Top 100 list," sponsored by the Bristol Post
Strategy for Action for ME[edit | edit source]
PACE trial data release[edit | edit source]
- Sharing research data: Board of Trustees states our position February 12, 2016
- Our letter in support of PACE trial data release February 26, 2016
Son's ME diagnosis[edit | edit source]
A year into becoming Chief Executive of Action for ME, her youngest son was diagnosed with ME at age 11.
See also[edit | edit source]
References[edit | edit source]
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.