Clark Ellis is a UK writer who is mostly housebound because of graded exercise therapy, a highly controversial treatment for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). In his blog, The Self-Taught Author, he writes about ME/CFS advocacy, "the politics at play, about bad research like PACE trial and good research like the End ME/CFS Project, and interviewing doctors or advocates, fundraising, etc."
Advocacy[edit | edit source]
Mr Ellis wrote the series, "Forbidden Fruits," calling for PACE trial data to be released and in Part 3 began a series calling on UK ME Charities to join in on the PACE trial data requests. Part 5 is an open letter to Association of Young People with ME.
Online presence[edit | edit source]
Learn more[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- PACE Trial’s Forbidden Fruit: Why We Must Be Allowed A Look Inside 12/13/2015
- PACE Trial’s Forbidden Fruit: Is The Data Really Poisonous? 1/25/2016
- PACE Trial’s Forbidden Fruit, Part 3: Charities Must Echo Patient Calls For Data Release 1/01/2016
- PACE Trial’s Forbidden Fruits: The Fruit of Your Labour 1/15/2016
- PACE Trial’s Forbidden Fruits: An open letter to AYME 1/18/2016