All-Party Parliamentary Group on Myalgic Encephalomyelitis

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The All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) is a British group of backbench members of parliament, from all political parties and from Houses of Commons and Lords, who meet to discuss ME. The group is co-chaired by Sir Peter Bottomley MP and Lady Countess of Mar. The group is supported by Action for ME ,the ME Association, ME Research UK, Association of Young People with ME, Tymes Trust, the ME Trust, reMEmber, the 25% ME Group, Invest in ME, and Blue Ribbon Awareness for ME (BRAME).[1] Secretariat is provided by Action for ME & the ME Association. [2]

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Forward-ME group

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Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.