Mild myalgic encephalomyelitis or chronic fatigue syndrome: Difference between revisions

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===Mild ME/CFS is not ===
===Mild ME/CFS is not ===
* it is not another name for [[idiopathic chronic fatigue|unexplained chronic fatigue]]  
* it is not another name for [[idiopathic chronic fatigue|unexplained chronic fatigue]]  
* a [[chronic fatigue (symptom)|symptom]] caused by another another illness
* a [[chronic fatigue (symptom)|symptom]] caused by another illness
* similar to feeling [[Tired all the time|"Tired all the time"]] (TATT)
* similar to feeling [[Tired all the time|"Tired all the time"]] (TATT)
* another name for [[burnout]] or exhaustion, or the result of doing too much  
* another name for [[burnout]] or exhaustion, or the result of doing too much  
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People with mild ME/CFS care for themselves and do some light domestic tasks (sometimes needing support) but may have difficulties with mobility. Most are still working or in education, but to do this they have probably stopped all leisure and social pursuits. They often have reduced hours, take days off and use the weekend to cope with the rest of the week.
People with mild ME/CFS care for themselves and do some light domestic tasks (sometimes needing support) but may have difficulties with mobility. Most are still working or in education, but to do this they have probably stopped all leisure and social pursuits. They often have reduced hours, take days off and use the weekend to cope with the rest of the week.


The UK's [[National Health Service]] definition of mild ME/CFS can be found within the 2021 [[NICE guidelines]].<ref name="ng206">{{Cite web|url=https://www.nice.org.uk/guidance/ng206|title=Myalgic Encephalomyelitis (or Encephalopathy)/Chronic Fatigue Syndrome:diagnosis and management. NICE guideline. | last=NICE Guideline Development Group|first=|authorlink=|publisher=[[National Institute for Health and Care Excellence]]|date=2021-10-29}}</ref>
The UK's [[National Health Service]] definition of mild ME/CFS can be found within the 2021 [[NICE guidelines]].<ref name="ng206">{{Cite web|url=https://www.nice.org.uk/guidance/ng206 | title = Myalgic Encephalomyelitis (or Encephalopathy)/Chronic Fatigue Syndrome:diagnosis and management. NICE guideline. | last=NICE Guideline Development Group | first = | authorlink = |publisher=[[National Institute for Health and Care Excellence]] | date = 2021-10-29}}</ref>


==International Consensus Criteria ==
==International Consensus Criteria ==
Mild Myalgic Encephalomyelitis requires a minimum of a 50% reduction in activity as a direct result of the illness.<ref name="ICC2011primer">{{citation | last1 = Carruthers | first1 = BM | authorlink1 = Bruce Carruthers | last2 = van de Sande | first2 = MI | authorlink2 = Marjorie van de Sande| last3 = De Meirleir | first3 = KL | authorlink3 = Kenny de Meirleir| last4 = Klimas | first4 = NG | authorlink4 = Nancy Klimas| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick| last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell| last7 = Staines | first7 = D | authorlink7 = Donald Staines| last8 = Powles | first8 = ACP | authorlink8 = A C Peter Powles | last9 = Speight | first9 = N | authorlink9 = Nigel Speight | last10 = Vallings | first10 = R | authorlink10= Rosamund Vallings | last11 = Bateman | first11= L | authorlink11 = Lucinda Bateman | last12 = Bell | first12 = DS | authorlink12 = David Bell | last13 = Carlo-Stella | first13 =  N | authorlink13= Nicoletta Carlo-Stella | last14 = Chia | first14 =  J | authorlink14= John Chia | last15 = Darragh | first15 =  A | authorlink15= Austin Darragh | last16 = Gerken | first16= A | authorlink16= Anne Gerken | last17 = Jo | first17= D | authorlink17= Daehyun Jo | last18 = Lewis | first18 =  DP | authorlink18= Donald Lewis | last19 = Light | first19 = AR | authorlink19= Alan Light | last20 = Light | first20= KC | authorlink20= Kathleen Light | last21 = Marshall-Gradisnik | first21 =  S | authorlink21= Sonya Marshall-Gradisnik | last22 = McLaren-Howard | first22 =  J | authorlink22= John McLaren-Howard | last23 = Mena | first23= I | authorlink23= Ismael Mena | last24 = Miwa | first24 =  K | authorlink24= Kunihisa Miwa| last25 = Murovska | first25 =  M | authorlink25= Modra Murovska| last26 = Stevens | first26 =  SR | authorlink26= Staci Stevens | title = Myalgic encephalomyelitis: Adult & Paediatric: International Consensus Primer for Medical Practitioners | date = 2012| isbn = 978-0-9739335-3-6 | url = http://www.investinme.org/Documents/Guidelines/Myalgic%20Encephalomyelitis%20International%20Consensus%20Primer%20-2012-11-26.pdf}}</ref>
Mild Myalgic Encephalomyelitis requires a minimum of a 50% reduction in activity as a direct result of the illness.<ref name="ICC2011primer">{{citation | last1 = Carruthers | first1 = BM | authorlink1 = Bruce Carruthers | last2 = van de Sande | first2 = MI | authorlink2 = Marjorie van de Sande | last3 = De Meirleir | first3 = KL | authorlink3 = Kenny de Meirleir | last4 = Klimas | first4 = NG | authorlink4 = Nancy Klimas | last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick | last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell | last7 = Staines | first7 = D | authorlink7 = Donald Staines | last8 = Powles | first8 = ACP | authorlink8 = A C Peter Powles | last9 = Speight | first9 = N | authorlink9 = Nigel Speight | last10 = Vallings | first10 = R | authorlink10 = Rosamund Vallings | last11 = Bateman | first11 = L | authorlink11 = Lucinda Bateman | last12 = Bell | first12 = DS | authorlink12 = David Bell | last13 = Carlo-Stella | first13 =  N | authorlink13 = Nicoletta Carlo-Stella | last14 = Chia | first14 =  J | authorlink14 = John Chia | last15 = Darragh | first15 =  A | authorlink15 = Austin Darragh | last16 = Gerken | first16 = A | authorlink16 = Anne Gerken | last17 = Jo | first17 = D | authorlink17 = Daehyun Jo | last18 = Lewis | first18 =  DP | authorlink18 = Donald Lewis | last19 = Light | first19 = AR | authorlink19 = Alan Light | last20 = Light | first20 = KC | authorlink20 = Kathleen Light | last21 = Marshall-Gradisnik | first21 =  S | authorlink21 = Sonya Marshall-Gradisnik | last22 = McLaren-Howard | first22 =  J | authorlink22 = John McLaren-Howard | last23 = Mena | first23 = I | authorlink23 = Ismael Mena | last24 = Miwa | first24 =  K | authorlink24 = Kunihisa Miwa | last25 = Murovska | first25 =  M | authorlink25= Modra Murovska | last26 = Stevens | first26 =  SR | authorlink26 = Staci Stevens | title = Myalgic encephalomyelitis: Adult & Paediatric: International Consensus Primer for Medical Practitioners | date = 2012| isbn = 978-0-9739335-3-6 | url = http://www.investinme.org/Documents/Guidelines/Myalgic%20Encephalomyelitis%20International%20Consensus%20Primer%20-2012-11-26.pdf}}</ref>


==Comparison ==
==Comparison ==
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==Notable studies ==
==Notable studies ==
* 2015, Fatigue in adults with post-infectious fatigue syndrome: a qualitative content analysis<ref name="Stormorken2015">{{Cite web|first =Eva |last =Stormorken|author-link =Eva Stormorken|first2 = Leonard A. | last2 = Jason|author-link2=Leonard Jason |first3= Marit |last3 =Kirkevold| title = Fatigue in adults with post-infectious fatigue syndrome: a qualitative content analysis|journal =BMC Nursing |volume =14|pages = 64|url=https://bmcnurs.biomedcentral.com/articles/10.1186/s12912-015-0115-5| doi =10.1186/s12912-015-0115-5| pmid =26617466| pmc = PMC4662830}}</ref> -[https://bmcnurs.biomedcentral.com/articles/10.1186/s12912-015-0115-5 (Full text)]
* 2015, Fatigue in adults with post-infectious fatigue syndrome: a qualitative content analysis<ref name="Stormorken2015">{{Cite web|first =Eva |last =Stormorken | authorlink = Eva Stormorken | first2 = Leonard A. | last2 = Jason | authorlink2 = Leonard Jason | first3 = Marit | last3 = Kirkevold| title = Fatigue in adults with post-infectious fatigue syndrome: a qualitative content analysis|journal =BMC Nursing |volume =14|pages = 64|url=https://bmcnurs.biomedcentral.com/articles/10.1186/s12912-015-0115-5| doi =10.1186/s12912-015-0115-5| pmid =26617466| pmc = PMC4662830}}</ref> - [https://bmcnurs.biomedcentral.com/articles/10.1186/s12912-015-0115-5 (Full text)]


==See also ==
==See also ==

Latest revision as of 13:59, July 25, 2023

Mild myalgic encephalomyelitis or mild chronic fatigue syndrome or mild ME/CFS is a serious neurological disease, and should not be confused with either a mild level of illness, or mild fatigue.

People with mild ME/CFS cannot carry on as normal and are forced to reduce their activities because of the hallmark symptom, post-exertional malaise, which prevents them from engaging in exertion beyond certain thresholds without a significant worsening of symptoms. While the term "mild" is used, mild ME/CFS still entails a substantial level of functional impairment compared to that of a healthy person.

Mild ME/CFS is the lowest level of severity of ME/CFS, which is a serious neurological disease affecting many different bodily systems.

Mild ME/CFS is not[edit | edit source]

NHS definition[edit | edit source]

Mild ME/CFS

People with mild ME/CFS care for themselves and do some light domestic tasks (sometimes needing support) but may have difficulties with mobility. Most are still working or in education, but to do this they have probably stopped all leisure and social pursuits. They often have reduced hours, take days off and use the weekend to cope with the rest of the week.

The UK's National Health Service definition of mild ME/CFS can be found within the 2021 NICE guidelines.[1]

International Consensus Criteria[edit | edit source]

Mild Myalgic Encephalomyelitis requires a minimum of a 50% reduction in activity as a direct result of the illness.[2]

Comparison[edit | edit source]

Mild severity: I walk...on Thursdays, Fridays. I've been quite ill (Andrew, 40s). The holiday travel exertion was too strenuous... I collapsed. (Wanda, 50s). Moderate severity: After trying to work for 14 days I became much worse (Yvonne, 30s). I tried to exercise and collapsed like a bunch of broccoli (Sue, 20s). Severe: You even get tired from speaking...from sitting (Wanda, 50s).

Fluctuating level of symptoms[edit | edit source]

Invisible illness[edit | edit source]

ME/CFS is known as an invisible illness due to the lack of obvious physical signs of illness.

Impact[edit | edit source]

Work and education[edit | edit source]

Care needs[edit | edit source]

Mobility[edit | edit source]

Notable studies[edit | edit source]

  • 2015, Fatigue in adults with post-infectious fatigue syndrome: a qualitative content analysis[3] - (Full text)

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]