List of scientific and media response to release of PACE trial data

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Follow the release of the PACE trial data and subsequent reanalysis, there was extensive coverage in the media, scientific journals, and other outlets. The following includes a list of coverage.

Coverage[edit | edit source]

General media coverage[edit | edit source]

Queen Mary University of London/Student Union - The Print Newspaper[edit | edit source]

Blogs[edit | edit source]

Media Response by PACE authors[edit | edit source]

Scientific Journals[edit | edit source]

Some of the PACE authors had a 'Response to the editorial' in January 2017 which in turn led to over a dozen responses in the Journal of Health Psychology.

See also[edit | edit source]

References[edit | edit source]

  1. Retraction Watch (August 17, 2016), UK tribunal orders release of data from controversial chronic fatigue syndrome study
  2. http://sci-hub.cc/doi/10.1136/bmj.i4614
  3. iNews UK; Felicity Morse (August 19, 2016), Chronic Fatigue Syndrome sufferers have just had a small victory, archived from the original on August 15, 2019
  4. iNews UK; Paul Gallagher (August 19, 2016), Chronic Fatigue Syndrome: tribunal orders data from controversial trial to be released
  5. What Doctors Don't Tell You (website) (August 22, 2016), Researchers who claimed chronic fatigue is “all in the mind” forced to disclose data
  6. Edwards, Jonathan CW (August 27, 2016), "Tribunal was right to order release of chronic fatigue trial data", The Conversation (UK)
  7. Anderssen, Alex (August 17, 2016), "QMUL "studying" PACE data-release ruling", #MEAction
  8. https://twitter.com/pathcath/status/812439470586953728?ref_src=twsrc%5Etfw
  9. https://twitter.com/pathcath/status/819232955155488769
  10. https://www.newscientist.com/letter/mg23331141-000-6-we-can-share-data-only-when-rules-are-respected/ We can share data only when rules are respected
  11. http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12101/Myth-busting-a-myth-busting
  12. https://medicalxpress.com/news/2017-03-chronic-fatigue-syndrome-doctored-adding.html
  13. http://bigstory.ap.org/article/2c3a7208dd8140e0ae725006377ef245/how-study-about-chronic-fatigue-syndrome-was-doctored
  14. Gelman, Andrew (July 9, 2017), "A Memoir of Chronic Fatigue Illustrates the Failures of Medical Research", New Yorker (US)
  15. https://www.youtube.com/watch?v=g8x-VBLcRuA
  16. https://www.nature.com/articles/d41586-018-01285-x
  17. https://www.nature.com/articles/d41586-018-03055-1
  18. https://www.ncbi.nlm.nih.gov/pubmed/27654128#cm27654128_30328

BMJ The BMJ (previously the British Medical Journal) is a weekly peer-reviewed medical journal.

BMJ The BMJ (previously the British Medical Journal) is a weekly peer-reviewed medical journal.

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.