Graham McPhee was a retired British mathematics school teacher and a patient activist and advocate for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Graham McPhee conducted a citizen science analysis of the PACE trial alongside Tom Kindlon, Brian Hughes, Adrian Baldwin, Janelle Wiley and others, and he created the MEAnalysis YouTube channel and blog to explain the scientific flaws in the design of the PACE trial, and the surrounding the scientific methodology used in support of the controversial CBT and GET treatments for ME/CFS.
In 2015, Graham made a Freedom of Information request for PACE trial data. The request was refused, but later published after another patient took a similar request to tribunal.
Death[edit | edit source]
Graham McPhee passed away in hospital on October 5, 2021. During the last year of his life, Graham spent a great deal of time in hospital, and was treated for sepsis. After he passed away, several UK charities posted a tribute to him, describing his advocacy for ME/CFS patients, and his character.
Publications[edit | edit source]
- 2017, Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome in Journal of Health Psychology
- 2019, Parliamentary briefing for Carol Monaghan MP's debate on Myalgic Encephalomyelitis with a Science for ME working group, #MEAction, Action for ME and the ME Association
- 2019, Monitoring treatment harm in myalgic encephalomyelitis/chronic fatigue syndrome: A freedom-of-information study of National Health Service specialist centres in England - (Abstract)
Online presence[edit | edit source]
- MEAnalysis Blog
- E-mail: firstname.lastname@example.org
- Facebook - Personal
- Facebook - MEAnalysis
- MEAnalysis YouTube channel
See also[edit | edit source]
- PACE trial
- Dialogues for a neglected illness
- Cognitive behavioral therapy (CBT)
- Graded exercise therapy (GET)
- Tom Kindlon
- Voices from the Shadows
Learn more[edit | edit source]
- 2015, BBC South East Today - Graham McPhee
- 2015, East Sussex man calls for much more biomedical research into M.E. | BBC South East
References[edit | edit source]
- ↑ 1.01.1 Action for ME (October 7, 2021). "Honouring the life and work of Graham McPhee". Action for ME. Retrieved October 11, 2021.
- ↑ What Do They Know - Fitness data for PACE trial
- ↑ "Graham McPhee". Science for ME. October 6, 2021. Retrieved October 11, 2021.
- ↑ 4.04.1 "Sad news of the death of Graham McPhee". ME Association. October 11, 2021.
- ↑ McPhee, Graham (August 1, 2017). "Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome". Journal of Health Psychology. 22 (9): 1181–1186. doi:10.1177/1359105317707215. ISSN 1359-1053.
- ↑ McPhee, Graham; Baldwin, Adrian; Kindlon, Tom; Hughes, Brian M (June 24, 2019). "Monitoring treatment harm in myalgic encephalomyelitis/chronic fatigue syndrome: A freedom-of-information study of National Health Service specialist centres in England". Journal of Health Psychology: 135910531985453. doi:10.1177/1359105319854532. ISSN 1359-1053.
cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.
graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.
The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.