Science for ME

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Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]

S4ME reported that its forum had reached 500 members on December 17th 2017[2], and 2,646 members as at August 4th 2021.[3]


Notable Forum Members[edit | edit source]

Researcher Interaction[edit | edit source]

Forum Member Advocacy Projects[edit | edit source]

  • Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [8]
  • Open letter to NICE concerning the Guideline Committee for ME/CFS [9]
  • Briefing document - The PACE Trial Controversy: A Summary [10]

Publicly Visible Forums[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.