Science for ME

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
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Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]

S4ME reported that its forum had reached 500 members on December 17th 2017[2], and 2,646 members as at August 4th 2021.[3]


Notable Forum Members[edit | edit source]

Researcher Interaction[edit | edit source]

Forum Member Advocacy Projects[edit | edit source]

  • Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [8]
  • Open letter to NICE concerning the Guideline Committee for ME/CFS [9]
  • Briefing document - The PACE Trial Controversy: A Summary [10]

Publicly Visible Forums[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]

  1. ↑ https://www.facebook.com/pg/sci4me/about/
  2. ↑ https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245
  3. ↑ "Science for ME page on MEpedia". Science for ME. Retrieved August 4, 2021.
  4. ↑ https://youtu.be/eIMDoRvE2yA
  5. ↑ https://www.s4me.info/threads/science-for-me-written-q-a-with-prof-chris-ponting.4743/
  6. ↑ https://youtu.be/FarVtTHmKLc
  7. ↑ https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/
  8. ↑ https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/
  9. ↑ https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/
  10. ↑ https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/
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