Science for ME
Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."
Notable Forum Members[edit | edit source]
Researcher Interaction[edit | edit source]
- Video Q&A with Dr Sadie Whittaker from Solve ME/CFS Initiative, May 2019.
- Written Q&A with Professor Chris Ponting, June 2018.
- Science for ME video Q&A with Dr Jose Montoya, January 2018 
- Q&A with team members of the UK ME/CFS biobank, December 14th 2017.
Forum Member Advocacy Projects[edit | edit source]
- Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire 
- Open letter to NICE concerning the Guideline Committee for ME/CFS 
- Briefing document - The PACE Trial Controversy: A Summary 
Publicly Visible Forums[edit | edit source]
- ME/CFS News and Research
- Other News and Research
- Doctors and Diagnostics
- Missed, Alternative or Co-existing Diagnoses
- Living with ME/CFS
Online presence[edit | edit source]
References[edit | edit source]
- "Science for ME page on MEpedia". Science for ME. Retrieved August 4, 2021.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.