Steven Lubet

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Source:northwestern.edu

Steven Lubet is the Williams Memorial Professor at Northwestern University Pritzker School of Law, where he specializes in professional responsibility and ethics. He has been living with Chronic Fatigue Syndrome (CFS) since 2006.

Debra Cassens Weiss wrote about Professor Lubet's CFS battle in ABA Journal: "Well-known law prof battles stigma of chronic fatigue syndrome by going public". Professor Lubet notes patients are "treated as malingerers and met with disbelief" with many "referred to psychiatrists" and that he 'outed' himself [about having ME/CFS] to broaden public understanding."[1]

PACE trial criticism[edit | edit source]

It is understandable that the PACE investigators would defend the validity of their study, but they have understated their professional stake in the reported  outcomes of the trial, which was  framed from the outset as determining more than simply the  effectiveness of the therapies.  In fact, they were testing their own theories of the illness, as detailed in the Lancet paper in which they first announced their results... Investigator bias and the PACE trial - Steven Lubert
PACE trial bias - quote from Steven Lubert, Investigator bias and the PACE trial. The PACE trial was based on the Cognitive Behavioral Model - the theory that ME/CFS was fully reversible with behavioral and psychological interventions (GET and CBT), and that no underlying disease process was at work. Patients were selected using the Oxford criteria developed by Sharpe, and recovery was assessed with Chalder's Chalder Fatigue Scale and other patient questionnaires.(Poster licensed for reuse: CC-BY-4.0)

Mr. Lubet is a critic of the PACE trial and has written pieces deconstructing its faults.

Education[edit | edit source]

  • JD, University of California, Berkeley
  • BA, Northwestern University

Open letters[edit | edit source]

  • 2017, Mr. Lubert was one of the signatories of open letter requesting the journal, Psychological Medicine, to retract their paper about the inflated recovery rates of the PACE trial immediately.[2]

Notable articles[edit | edit source]

Virology Blog

Journal of Health Psychology

  • March 7, 2017: "Investigator bias and the PACE trial"
    Abstract - The PACE investigators reject Geraghty’s suggestion that the cognitive behavior therapy/graded exercise therapy trial could have been better left to researchers with no stake in the theories under study. The potential sources and standards for determining researcher bias are considered, concluding that the PACE investigators “impartiality might reasonably be questioned.”[3]
  • June 14, 2017: "Defense of the PACE trial is based on argumentation fallacies"
    Abstract - In defense of the PACE trial, Petrie and Weinman employ a series of misleading or fallacious argumentation techniques, including circularity, blaming the victim, bait and switch, non-sequitur, setting up a straw person, guilt by association, red herring, and the parade of horribles. These are described and explained.[4]

The Faculty Lounge

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. "Well-known law prof battles stigma of chronic fatigue syndrome by going public". American Bar Association Journal. Jan 15, 2015. 
  2. Lubet, Steven (Mar 13, 2017). "An open letter to psychological medicine about recovery and the PACE trial". Virology blog. 
  3. Lubet, Steven (Mar 7, 2017). "Investigator bias and the PACE trial". Journal of Health Psychology. 22 (9): 1123–1127. doi:10.1177/1359105317697324. 
  4. Lubet, Steven (Jun 14, 2017). "Defense of the PACE trial is based on argumentation fallacies". Journal of Health Psychology. doi:10.1177/1359105317712523. 

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

PACE trial - A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

bias - Bias in research is "a systematic deviation of an observation from the true clinical state".

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

Oxford criteria - A set of diagnostic criteria for chronic fatigue syndrome. These criteria focus on "fatigue" as the defining symptom.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.