Boom and bust activity cycle

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After energy limits are exceeded, a dramatic increase in symptoms follows that prevents the patient from doing even minimal activity.

The boom and bust cycle or over-activity and crash cycle is a common result when people with ME/CFS try to ignore and push through their symptoms.

Post-exertional malaise[edit | edit source]

Exceeding personal energy limits in ME/CFS results in post-exertional malaise (PEM): increased and debilitating symptoms that typically begin around 24 hours after exceeding limits, but may begin up to 3 days after. The delayed onset of PEM makes it difficult for patients to know when they are at or approaching their energy limit, which can cause the illness to feel very unpredictable. Post-exertional malaise may last days, weeks or longer, and even trivial activity may exceed someone's energy limit.

See also
Post-exertional malaise.

Boom and bust[edit | edit source]

When ME/CFS patients become worse after pushing through their symptoms, people with ME/CFS then have to choose again between rest or trying again to "push through" - which causes them to deteriorate further, until eventually they physically cannot continue. Both resting and pushing through result in an "greatly lowered ability to do activities that were usual before the illness", a symptom that is required for the diagnosis of ME/CFS.[1][2]

The cycle of repeatedly exceeding energy limits by doing too much activity or even pushing through symptoms followed by being forced to totally stop is called the "[boom and bust cycle", and is very widely recognized in ME/CFS, and in some patients without post-exertional malaise, including chronic pain and chronic fatigue patients.[3] A significant proportion of people with Long COVID report experiencing post-exertional malaise and find they have a boom and bust cycle.[4]

Consequences[edit | edit source]

The Canadian Consensus Criteria for ME/CFS states that the boom and bust cycle can result in more severe illness:

"Early warning signs of a pending 'crash' must be respected. Patients can suffer severe and prolonged exacerbation of their illness if they transgress their activity boundaries too deeply or too often."[5]

Pacing[edit | edit source]

Activity pacing or energy management is a way of planning and monitoring activity to try to avoid exceeding energy limits, in order to avoid the resulting periods of post-exertional malaise, which often forced patients to spend days in bed recovering.[6][5]

Different methods of pacing include pacing with a heart rate monitor, Energy Envelope Theory, and spoon theory.

See also
Pacing.
See also
Energy Envelope Theory.

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. ↑ "Symptoms | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. January 27, 2021. Retrieved February 25, 2021.
  2. ↑ NICE Guideline Development Group (October 29, 2021). "Myalgic Encephalomyelitis (or Encephalopathy)/Chronic Fatigue Syndrome:diagnosis and management. NICE guideline". National Institute for Health and Care Excellence.
  3. ↑ Antcliff, Deborah; Keenan, Anne-Maree; Keeley, Philip; Woby, Steve; McGowan, Linda. ""Pacing does help you get your life back": The acceptability of a newly developed activity pacing framework for chronic pain/fatigue". Musculoskeletal Care. n/a (n/a). doi:10.1002/msc.1557. ISSN 1557-0681.
  4. ↑ Horton, Simon MC; Poland, Fiona; Kale, Swati; de Lourdes Drachler, Maria; de Carvalho Leite, Jose Carlos; McArthur, Maggie A.; Campion, Peter D.; Pheby, Derek; Nacul, Luis (November 15, 2010). "Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adults: a qualitative study of perspectives from professional practice". BMC Family Practice. 11 (1): 89. doi:10.1186/1471-2296-11-89. ISSN 1471-2296. PMC 2994803. PMID 21078171.
  5. ↑ 5.0 5.1 Carruthers, Bruce M.; Jain, Anil Kumar; De Meirleir, Kenny L.; Peterson, Daniel L.; Klimas, Nancy G.; Lerner, A. Martin; Bested, Alison C.; Flor-Henry, Pierre; Joshi, Pradip; Powles, AC Peter; Sherkey, Jeffrey A.; van de Sande, Marjorie I. (2003). "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols" (PDF). Journal of Chronic Fatigue Syndrome. 11 (2): 7–115. doi:10.1300/J092v11n01_02.
  6. ↑ Carruthers, BM; van de Sande, MI; De Meirleir, KL; Klimas, NG; Broderick, G; Mitchell, T; Staines, D; Powles, ACP; Speight, N; Vallings, R; Bateman, L; Bell, DS; Carlo-Stella, N; Chia, J; Darragh, A; Gerken, A; Jo, D; Lewis, DP; Light, AR; Light, KC; Marshall-Gradisnik, S; McLaren-Howard, J; Mena, I; Miwa, K; Murovska, M; Stevens, SR (2012), Myalgic encephalomyelitis: Adult & Paediatric: International Consensus Primer for Medical Practitioners (PDF), ISBN 978-0-9739335-3-6

flare-up A symptoms flare in ME/CFS is a temporary increase in symptoms, alternatively known as experiencing post-exertional malaise. May be referred to as a "crash" or "collapse".

See post-exertional malaise.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.

See post-exertional malaise.

pacing The practice of staying within one's "energy envelope" or personal limit by combining periods of activity with periods of rest or avoiding exerting beyond a certain level. ME/CFS patients use pacing to avoid or reduce post-exertional malaise (PEM). Some patients use a heart rate monitor to help with pacing.

NICE guidelines Clinical guidelines used in the UK.

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