All-Party Parliamentary Group on Myalgic Encephalomyelitis: Difference between revisions
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Members: | |||
Peter Aldous | |||
Heidi Alexander | |||
Hannah Bardell | |||
Graham Brady | |||
Tom Brake | |||
Richard Burden | |||
Alex Chalk | |||
Yvette Cooper | |||
Geraint Davies | |||
Michael Gapes | |||
Ben Howlett | |||
Seema Kennedy | |||
Ian Liddell-Grainger | |||
Caroline Lucas | |||
Anne Main | |||
Steve McCabe | |||
Kerry McCarthy | |||
Ian Murray | |||
Stephen Pound | |||
Jeremy Quin | |||
Jacob Rees-Mogg | |||
Sir Nicholas Soames | |||
Keir Starmer | |||
Dr Philippa Whitford | |||
Hywel Williams | |||
==Minutes & reports== | ==Minutes & reports== |
Revision as of 12:34, September 6, 2021
The All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) is a British group of backbench members of parliament, from. all political parties and from Houses of Commons and Lords, who meet to discuss ME.[1] We have minutes from the ME APPG dating from 2001, with references to the existence of an earlier APPG chaired by Tony Wright MP[2].. It ran for many years.
Carol Monaghan MP revived the APPG on ME in February 2020; it had previously closed in 2017 due to lack of interest, “momentum” & the charities providing joint secretariat deciding that the time was better spent elsewhere“ .[3][4]
APPG Focus[edit | edit source]
The APPG for ME agreed to focus on the following key topics:
- Access to healthcare
- Access to financial support and welfare benefits
- Protection for children with ME
- Biomedical research spending by the Medical Research Council and the National Institute for Health Research
- Economic and societal impact of ME as a justification for additional spending
- Medical diagnosis
In addition:
- Producing a key report on issues impacting ME sufferers[5]
APPG members[edit | edit source]
The first meeting since the 2019 general election was held in February 2020, and arranged by Carol Monaghan MP.[3]
Officer's Roles[edit | edit source]
- Carol Monaghan, MP (SNP) - Chair
- Sharon Hodgson, MP (Labour, Washington and Sunderland West) - Co-Chair
- Stephen Metcalfe, MP (Conservative, South Basildon and East Thurrock) - Co-Chair
- Ben Lake, MP (Plaid Cymru, Ceredigion) - Vice Chair
- Hywel Williams, MP/AS (Plaid Cymru, Arfon) - Secretary
- Olivia Blake, MP (Labour, Sheffield Hallam) - Treasurer[5]
The following people were also reported as attending the first meeting:
- Deidre Brock, MP (SNP, Edinburgh North and Leith)
- Fiona Bruce, MP (Conservative, Congleton)
- Wayne David, MP (Labour, Caerphilly)
- James Davies, MP (Conservative, Vale of Clwyd)
- Mary Glindon, MP (Labour, North Tyneside)
- Robert Goodwill, MP (Conservative, Scarborough and Whitby)
- Margaret Greenwood, MP (Labour, Wirral West)
- Dame Diana Johnson, MP (Labour, Kingston upon Hull North)
- Sally-Ann Hart, MP (Conservative, Hastings and Rye)
- Kerry McCarthy, MP (Labour, Bristol East)
- Navendu Mishra, MP (Labour, Stockport)
- Gavin Newlands, MP (SNP, Paisley & Renfrewshire North)
- Jonathan Reynolds, MP (Labour, Stalybridge and Hyde)
- Alex Sobel, MP (Labour, Leeds North West)
- James Sunderland, MP (Conservative, Bracknell)
- Stephen Timms, MP (Labour, East Ham)
- Michael Tomlinson, MP (Conservative, Mid Dorset and North Poole)
- Liz Twist, MP (Conservative, Blaydon), MP[5][6][7]
Other members[edit | edit source]
APPG members who did not attend the first meeting include:
- Louise Haigh, MP (Labour)[8]
A list of APPG members has not been published yet.
Previous APPG members[edit | edit source]
All APPGs need to be restarted parliament is dissolved for a general election, and must be restarted after; meaning that the groups change after every election.[9]
- From 2015[10] - 2017,[1] the group was co-chaired by Sir Peter Bottomley MP and Lady Countess of Mar. The group was supported by Action for ME, the ME Association, ME Research UK, Association of Young People with ME, Tymes Trust, the ME Trust, reMEmber, the 25% ME Group, Invest in ME, and Blue Ribbon Awareness for ME (BRAME).[11] Secretariat was provided by Action for ME and the ME Association.[12] Officers were:
- Kerry McCarthy, Co-Chair
- Julian Sturdy, Co-Chair
- Carol Monaghan, Co-Chair
- Mark Tami, Vice Chair
- Daniel Zeichner, Secretary
Members:
Peter Aldous
Heidi Alexander
Hannah Bardell
Graham Brady
Tom Brake
Richard Burden
Alex Chalk
Yvette Cooper
Geraint Davies
Michael Gapes
Ben Howlett
Seema Kennedy
Ian Liddell-Grainger
Caroline Lucas
Anne Main
Steve McCabe
Kerry McCarthy
Ian Murray
Stephen Pound
Jeremy Quin
Jacob Rees-Mogg
Sir Nicholas Soames
Keir Starmer
Dr Philippa Whitford
Hywel Williams
Minutes & reports[edit | edit source]
There is apparently no central place where the minutes of the past decade are held. There has been no published APPG minutes or reports in 2021 although there have been meetings. There is a central site holding all minutes & reports from the first decade of the century.
- pre 2010, APPG on ME: All minutes & publications 2001-2009
- 2013, ME APPG minutes, 04/2013 - on severe ME
- 2020, Biomedical research meeting summary
Publications & Announcements[edit | edit source]
- 2016, APPG on ME: Supporting your Constituent with ME
- 2016, APPG on ME: List of Officers and Members
- 2017, The APPG comes to an end, focus of lobbying will now be via FowardME group
APPG Inquiries[edit | edit source]
The APPG laid out the basis for their inquiry in 2008[13] . The main recommendations of the report were that the numbers of those with MECFS had to be properly counted; that the recommendations of the 2002 chief medical officers CFS/ME report be implemented; that more was done to ensure proper training of Drs, GPs & the health professionals who staffed fatigue clinics.
One of the main focus of the APPG which formed in 2015[14] and lasted until 2017 was an inquiry into social care. This was chiefly led by the charity Action for ME
Learn more[edit | edit source]
- Register Of All-Party Groups - Myalgic Encephalomyelitis (ME)
- They work for you - Find your MP
- Action for ME webpage for APPG on ME (includes minutes of meetings)
See also[edit | edit source]
- Stigma and discrimination
- Ethical issues
- Access to benefits
- Medical Research Council
- National Institute for Health Research
- Forward-ME group
References[edit | edit source]
- ↑ 1.0 1.1 Forward-ME (July 2017). "Minutes of the Meeting held at the House of Lords, Tuesday 11 July 2017, 2pm". Forward-ME. Retrieved February 14, 2020.
- ↑ "All-Party Parliamentary Group on ME - Welcome to APPG on M.E." www.appgme.org.uk. Retrieved September 4, 2021.
- ↑ 3.0 3.1 #MEAction (January 12, 2020). "New APPG on ME for the UK - Meeting". #MEAction. Retrieved February 14, 2020.
- ↑ "The APPG on M.E. comes to an end. Focus of lobbying will now be via Forward-ME Group | 22 August 2017 | The ME Association". August 22, 2017. Retrieved September 4, 2021.
- ↑ 5.0 5.1 5.2 Shepherd, Charles (February 19, 2020). "Statement: What's next for the All-Party Parliamentary Group on ME?". The ME Association. Retrieved February 21, 2020.
- ↑ Association, M. E. (January 14, 2020). "Excellent meeting this afternoon to re-establish the APPG on ME. Around 30 MPs and staffers in attendance with no shortage of offers to take on officer roles. So full steam ahead with plans to set up a series of meetings to investigate areas of concern (1/2)pic.twitter.com/y9P11rFAl4". @MEAssociation. Retrieved February 14, 2020.
- ↑ Monaghan, Carol (January 14, 2020). "Delighted to have such broad cross-party support for the re-establishment of the APPG on ME. We will be pressing for better treatment programmes for those living with #ME #MyalgicEncephalomyelitispic.twitter.com/pn3vTPOQDT". @CMonaghanSNP. Retrieved February 14, 2020.
- ↑ Haigh, Louise (January 23, 2020). "I am! I just couldn't make their first meeting". @LouHaigh. Retrieved February 14, 2020.
- ↑ "All-Party Parliamentary Groups". UK Parliament. Retrieved February 14, 2020.
- ↑ "All-Party Parliamentary Group on ME | now officially re-registered | 8 July 2015 | The ME Association". July 8, 2015. Retrieved September 6, 2021.
- ↑ APPG on ME: Officers & Members (September 2016)
- ↑ Action for ME: APPG on ME
- ↑ "All-Party Parliamentary Group on ME - Welcome to APPG on M.E." www.appgme.org.uk. Retrieved September 5, 2021.
- ↑ "All-Party Parliamentary Group on ME | now officially re-registered | 8 July 2015 | The ME Association". July 8, 2015. Retrieved September 6, 2021.