Portal:History and People

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History and People

Myalgic encephalomyelitis (ME), a disease that occurs both sporadically and as cluster outbreaks, was first documented in Los Angeles in 1934. Since, there have been dozens of outbreaks recorded in the medical literature, most notably the 1948-49 Akureyri, Iceland outbreak, 1955 Royal Free Hospital Outbreak in London and the 1984 outbreak in Incline Village, Nevada. The disease's existence almost certainly predates 1934, and may have been unrecognized for centuries or misdiagnosed as hysteria, neurasthenia, and later, conversion disorder.

Myalgic encephalomyelitis was first known as atypical polio and later called "Icelandic disease" until it was officially named myalgic encephalomyelitis following the 1955 London outbreak. ME was recognized as a neurological disease by the World Health Organization in 1969. Following the 1984 outbreak in Nevada, it was renamed and recharacterized by the Centers for Disease Control as "Chronic Fatigue Syndrome."

In 2015, the US Institute of Medicine, based on a review of several decades of research, created a new definition of the disease and proposed a new name: Systemic exertion intolerance disease. Patient advocacy and a renewed interest in the disease among clinicians and scientists have led many new research groups to join the field in recent years, prompting several new discoveries and promising treatments to be tested via clinical trials. (more...)

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Selected historical articles

In 1984, there was an outbreak of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) (then thought to be Chronic Epstein-Barr virus) at Incline Village, Nevada, United States. An estimated 160 residents of Incline Village became ill in the winter of 1985. Chronic fatigue syndrome (CFS) was the name coined by the Centers for Disease Control (CDC) in response to an outbreak of "chronic flu-like illness" at Incline Village. (more...)

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Categories

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Advocates

Jamison Graham Hill is an author and, prior to becoming stricken with severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a bodybuilder and certified personal trainer. He is featured in the 2015 documentary, Forgotten Plague, by Ryan Prior and Nicole Castillo. In addition to writing a book on fitness, he has written articles for Ultra-FIT, Physique Magazine, ExtraFit Magazine, World Physique Magazine, and Inside Fitness.' (more...)

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In the news

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Scientists

Source: University of Utah Faculty page

Alan R. Light, Phd., is a Research Professor of Anesthesiology, Neurobiology and Anatomy at the Interdepartmental Program in Neuroscience at the University of Utah. He studies the neurobiology of pain and fatigue enhancement caused by injury and in Chronic Fatigue Syndrome and Fibromyalgia. Professor Light and his wife. Dr. Kathleen Light, are known for their work on post-exertional gene expression after exercise. (more...)

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Books & Film

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Clinicians

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Sarah Myhill is a British doctor running her own specialist ME clinic in Knighton, Powys, Wales, United Kingdom. Dr Myhill's web site is an extensive resource of articles and information based on her treatment of patients. The website runs to 920 webpages and has had over 6 million individual visits.

Dr Myhill's view is that the disease is characterised by a cellular metabolic mitochondrial dysfunction and has published several studies. Dr Myhill has treated in excess of 10,000 CFS/ME sufferers over her 30 year career. (more...)

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Selected picture

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BedFest is a virtual art and music festival by people with ME.
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Topics

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The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.