Association of Young People with ME
The Association of Young People with ME (AYME) was a UK national charity supporting children and young people affected by ME/CFS with members under 25. It was based in Newport Pagnell and the Chief Executive Officer was Mary-Jane Willows. Its lead medical advisor was Doctor Esther Crawley. The charity was a member of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) and UK CFS/ME Research Collaborative (CMRC).
Aims[edit | edit source]
Funding[edit | edit source]
Controversies[edit | edit source]
Support of research of Dr Esther Crawley
AYME have been active, vocal supporters and participants in Dr Crawley's paediatric trials which have involved the Lightning Process, Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET). Its role in the FITNET online Cognitive Behavioural therapy study to "help inform patients"
Notable people[edit | edit source]
- Mary-Jane Willows (Chief Executive)
- Esther Crawley (Lead Medical Advisor)
- Nigel Speight (Former Medical Advisor)
History[edit | edit source]
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- https://m.facebook.com/actionforme/photos/a.76870643208.71362.72990583208/10155087150888209/?type=3 Action for ME is pleased to announce the launch of our new Children's Services Team
- http://www.nets.nihr.ac.uk/projects/hta/14192109 FITNET to treat Paediatric CFS/ME (NIHR)
- http://www.meassociation.org.uk/2011/01/ethics-committee-finally-approves-controversial-pilot-into-lightning-process-and-children-with-mecfs/ SMILE gets ethical approval - ME Association (January 2011)
- http://www.ayme.org.uk/web/guest/news/-/asset_publisher/2uYbtahTJKdk/content/april-2011-analysis-of-pace-trial-results The PACE trial results – an analysis by Vivienne Parry, OBE
- https://autodidactauthor.wordpress.com/2016/03/06/pace-trials-forbidden-fruit-ayme-make-final-statement/ PACE Trial’s Forbidden Fruit: AYME Make Final Statement
Association of Young People with ME (AYME) - AYME was a UK national charity supporting children and young people affected by ME/CFS with members under 25. It's lead medical advisor was Doctor Esther Crawley. In April 2017 the charity merged with Action for ME, forming its Children's Services department run by Mary-Jane Willows.
All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG) - A British group of backbench members of parliament, from all political parties and from Houses of Commons and Lords, who meet to discuss ME.
graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.