The Tymes Trust (The Young ME Sufferers Trust) is a British patient charity providing support to children and young people who have myalgic encephalomyelitis (ME) and their families. It is the longest established national UK service for children and young people with ME and their families. The Trust is a member of the Forward-ME group and the All-Party Parliamentary Group on Myalgic Encephalomyelitis.
Aims[edit | edit source]
Tymes Trust aims to help children and young people with myalgic encephalomyelitis (ME) through the provision of appropriate support, advice and information. They also work to advance the education of the public and professionals concerned with the education or care of children and young people in all aspect of ME/CFS.
Some of the services Tymes Trust provide include the Tymes magazine, an advice line service, and a professionals referral service. They also provide The Tymes Trustcard to children for use in schools.
Notable people[edit | edit source]
- Jane Colby is the executive director of Tymes Trust.
Patrons[edit | edit source]
History[edit | edit source]
Tymes Trust began in 1989 in the form of the Tymes Magazine, which was published by two young people with ME. The trust became a registered charity in June 2000 and now offers a range of services. In 2010 Tymes Trust received the Queen’s Award for Voluntary Service for pursuing the educational rights of children with ME and advancing their care.
Funding[edit | edit source]
Online presence[edit | edit source]
See also[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.