Jane Colby

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

Jane Colby is a British advocate for paediatric patients and formerly had severe myalgic encephalomyelitis (ME) triggered by a viral infection. (Colby sometimes refers to the virus as "polio-like" or "related to polio"[1] and sometimes as coxsackie B).[2] She is a former head teacher and a member of the National Association of Educational Inspectors, Advisors, and Consultants.[3] She is the Executive Director of Tymes Trust, the longest established national UK service for children and young people with ME and their families.[4]

Books[edit | edit source]

  • 1996, ME - The New Plague, about the connection between ME and poliomyelitis.[5]
  • 1999, Zoe's Win, a book for children with ME[6]
  • 2013, ME - The New Plague 2: Reclaiming the Patient's Voice[7]

Notable studies[edit | edit source]

  • 1996, Long-term sickness absence due to ME/CFS in UK schools; an epidemiological study with medical and educational implications.[8] - (Full text)

Tymes Trust publications[edit | edit source]

The following educational materials for children living with ME and their parents and schools are written by Jane Colby and available through the Tymes Trust:

Posters[edit | edit source]

Professional guides[edit | edit source]

Talks and interviews[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. "ME - The New Plague 2 - About Jane". ME - The New Plague 2. Retrieved February 14, 2020.
  2. http://www.tymestrust.org/pdfs/mecfsseidintro.pdf
  3. "IIMEC1". Invest in ME Research. Retrieved February 14, 2020.
  4. "Tymes Trust - About Us". tymestrust.org. Retrieved February 14, 2020.
  5. ME: the new plague, Jane Colby - First and Best in Education - 1996 ISBN-10: 1860832156, ISBN-13: 978-1860832154
  6. Colby, Jane. (1999). Zoe's win. Fyfield, Essex: Dome Vision. ISBN 0-9537330-0-9. OCLC 45820439.
  7. "ME - The New Plague 2 - Home". ME - The New Plague 2. Retrieved February 14, 2020.
  8. Dowsett, Elizabeth G.; Colby, Jane (1996). "Long-Term Sickness Absence Due to ME/CFS in UK Schools: An Epidemiological Study with Medical and Educational Implications" (PDF). Journal of Chronic Fatigue Syndrome. 3 (2): 29–42. doi:10.1300/J092v03n02_04.
  9. "Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link". Journal of Clinical Pathology. 60 (2): 125–128. February 2007. doi:10.1136/jcp.2006.042606. ISSN 0021-9746. PMC 1860612. PMID 16935964.
  10. "IIMEC1". Invest in ME Research. Retrieved February 14, 2020.
  11. "The ME Show with Gary Burgess - Jane Colby". buzzsprout.com. May 28, 2018.