Jane Colby

Source:www.tymestrust.org

Jane Colby is a British advocate for paediatric patients and formerly had severe myalgic encephalomyelitis (ME) triggered by a viral infection. (Colby sometimes refers to the virus as "polio-like" or "related to polio" and sometimes as coxsackie B). She is a former head teacher and a member of the National Association of Educational Inspectors, Advisors, and Consultants. She is the Executive Director of Tymes Trust, the longest established national UK service for children and young people with ME and their families.

Books

• 1996, ME - The New Plague, about the connection between ME and poliomyelitis.
• 1999, Zoe's Win, a book for children with ME
• 2013, ME - The New Plague 2: Reclaiming the Patient's Voice

Notable studies

• 1996, Long-term sickness absence due to ME/CFS in UK schools; an epidemiological study with medical and educational implications. - (Full text)

• 2007, Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link - (Abstract)

Tymes Trust publications

The following educational materials for children living with ME and their parents and schools are written by Jane Colby and available through the Tymes Trust:

• The T Rex in the Room
• Paediatric ME, CFS, SEID for Families and their GPs
• False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)
• ME Awareness 2015: Equality and ME
• Explain Your Abilities (co-authored by Naomi Burgess)
• Diet in ME - is it such a big deal? (compiled with advice from Dr Alan Franklin and Elizabeth G Dowsett)
• A Presentation to the All Party Parliamentary Group on ME (co-authored by Joanna Smith)
• A Good Practice Guide to Education for Children with ME for GPs, Schools and Families
• Teacher Information on ME, Some children may be diagnosed as 'CFS'

Posters

• Banned from Sleeping Poster
• Why home-based education helps Poster (co-authored by Lord Clement-Jones CBE)
• 25 years of trusting TYMES Poster

Professional guides

• Professional Guides ME - The Illness and Common Misconceptions: Abuse, Neglect, Mental Incapacity
• Professional Guides Back to School?
• Professional Guides Pushing the Boundaries in ME/CFS
• Professional Guides The SENCO’s Key Role in Supporting Pupils With CFS/ME
• Professional Guides Physios Urged to Go Cautiously
• Professional Guides Implications for Schools of the Chief Medical Officer’s Working Group Report on CFS/ME
• Professional Guides ME/CFS Guidelines for Educational Psychologists (co-authored by Naomi Burgess)

Talks and interviews

• 2006 - Speaker at the 1st Invest in ME International ME Conference on Children and Education: Incidence, clusters and specific problems of youngsters with M.E. - (Video)
• May 6, 2018 - Interviewed on The ME Show podcast by Gary Burgess about the Tymes Trust charity. Episode link

Online presence

• Twitter
• Stripey socks blog
• Website

See also

• Tymes Trust
• ME - The New Plague

Learn more

• Tymes Trust website

See myalgic encephalomyelitis.

See chronic fatigue syndrome.

enterovirus A genus of RNA viruses which typically enter the body through the respiratory or gastrointestinal systems and sometimes spread to the central nervous system or other parts of the body, causing neurological, cardiac, and other damage. Since the first reports of myalgic encephalomyelitis (ME), enteroviruses have been suspected as a cause of ME. Enteroviruses have also been implicated as the cause of Type I diabetes, congestive heart failure, and other conditions. Enteroviruses include poliovirus, coxsackieviruses, and many others. New enteroviruses and new strains of existing enteroviruses are continuously being discovered. (Learn more: viralzone.expasy.org)

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.