Jane Colby

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Source:www.tymestrust.org

Jane Colby is a British advocate for paediatric patients and formerly had severe myalgic encephalomyelitis (ME) triggered by a viral infection. (Colby sometimes refers to the virus as "polio-like" or "related to polio"[1] and sometimes as coxsackie B).[2] She is a former head teacher and a member of the National Association of Educational Inspectors, Advisors, and Consultants.[3] She is the Executive Director of Tymes Trust, the longest established national UK service for children and young people with ME and their families.[4]

Books[edit | edit source]

  • 1996, ME - The New Plague, about the connection between ME and poliomyelitis.[5]
  • 1999, Zoe's Win, a book for children with ME[6]
  • 2013, ME - The New Plague 2: Reclaiming the Patient's Voice[7]

Notable studies[edit | edit source]

  • 1996, Long-term sickness absence due to ME/CFS in UK schools; an epidemiological study with medical and educational implications.[8] - (Full text)

Tymes Trust publications[edit | edit source]

The following educational materials for children living with ME and their parents and schools are written by Jane Colby and available through the Tymes Trust:

Posters[edit | edit source]

Professional guides[edit | edit source]

Talks and interviews[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. "ME - The New Plague 2 - About Jane". ME - The New Plague 2. Retrieved Feb 14, 2020. 
  2. http://www.tymestrust.org/pdfs/mecfsseidintro.pdf
  3. "Invest in ME Research - IIMEC1". www.investinme.org. Retrieved Feb 14, 2020. 
  4. "Tymes Trust - About Us". www.tymestrust.org. Retrieved Feb 14, 2020. 
  5. ME: the new plague, Jane Colby - First and Best in Education - 1996 ISBN-10: 1860832156, ISBN-13: 978-1860832154
  6. Colby, Jane. (1999). Zoe's win. Fyfield, Essex: Dome Vision. ISBN 0-9537330-0-9. OCLC 45820439. 
  7. "ME - The New Plague 2 - Home". ME - The New Plague 2. Retrieved Feb 14, 2020. 
  8. Dowsett, Elizabeth G.; Colby, Jane (1996). "Long-Term Sickness Absence Due to ME/CFS in UK Schools: An Epidemiological Study with Medical and Educational Implications" (PDF). Journal of Chronic Fatigue Syndrome. 3 (2): 29-42. doi:10.1300/J092v03n02_04q. 
  9. "Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link". Journal of Clinical Pathology. 60 (2): 125–128. Feb 2007. doi:10.1136/jcp.2006.042606. ISSN 0021-9746. PMC 1860612Freely accessible. PMID 16935964. 
  10. "Invest in ME Research - IIMEC1". www.investinme.org. Retrieved Feb 14, 2020. 
  11. "The ME Show with Gary Burgess - Jane Colby". buzzsprout.com. May 28, 2018. 

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

enterovirus - A genus of RNA viruses which typically enter the body through the respiratory or gastrointestinal systems and sometimes spread to the central nervous system or other parts of the body, causing neurological, cardiac, and other damage. Since the first reports of myalgic encephalomyelitis (ME), enteroviruses have been suspected as a cause of ME. Enteroviruses have also been implicated as the cause of Type I diabetes, congestive heart failure, and other conditions. Enteroviruses include poliovirus, coxsackieviruses, and many others. New enteroviruses and new strains of existing enteroviruses are continuously being discovered. (Learn more: viralzone.expasy.org)

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.