Jane Colby
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Jane Colby is a British advocate for paediatric patients and formerly had severe myalgic encephalomyelitis (ME) triggered by a viral infection. (Colby sometimes refers to the virus as "polio-like" or "related to polio"[1] and sometimes as coxsackie B).[2] She is a former head teacher and a member of the National Association of Educational Inspectors, Advisors, and Consultants.[3] She is the Executive Director of Tymes Trust, the longest established national UK service for children and young people with ME and their families.[4]
Books[edit | edit source]
- 1996, ME - The New Plague, about the connection between ME and poliomyelitis.[5]
- 1999, Zoe's Win, a book for children with ME[6]
- 2013, ME - The New Plague 2: Reclaiming the Patient's Voice[7]
Notable studies[edit | edit source]
- 1996, Long-term sickness absence due to ME/CFS in UK schools; an epidemiological study with medical and educational implications.[8] - (Full text)
- 2007, Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link[9] - (Abstract)
Tymes Trust publications[edit | edit source]
The following educational materials for children living with ME and their parents and schools are written by Jane Colby and available through the Tymes Trust:
- The T Rex in the Room
- Paediatric ME, CFS, SEID for Families and their GPs
- False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)
- ME Awareness 2015: Equality and ME
- Explain Your Abilities (co-authored by Naomi Burgess)
- Diet in ME - is it such a big deal? (compiled with advice from Dr Alan Franklin and Elizabeth G Dowsett)
- A Presentation to the All Party Parliamentary Group on ME (co-authored by Joanna Smith)
- A Good Practice Guide to Education for Children with ME for GPs, Schools and Families
- Teacher Information on ME, Some children may be diagnosed as 'CFS'
Posters[edit | edit source]
- Banned from Sleeping Poster
- Why home-based education helps Poster (co-authored by Lord Clement-Jones CBE)
- 25 years of trusting TYMES Poster
Professional guides[edit | edit source]
- Professional Guides ME - The Illness and Common Misconceptions: Abuse, Neglect, Mental Incapacity
- Professional Guides Back to School?
- Professional Guides Pushing the Boundaries in ME/CFS
- Professional Guides The SENCO’s Key Role in Supporting Pupils With CFS/ME
- Professional Guides Physios Urged to Go Cautiously
- Professional Guides Implications for Schools of the Chief Medical Officer’s Working Group Report on CFS/ME
- Professional Guides ME/CFS Guidelines for Educational Psychologists (co-authored by Naomi Burgess)
Talks and interviews[edit | edit source]
- 2006 - Speaker at the 1st Invest in ME International ME Conference on Children and Education: Incidence, clusters and specific problems of youngsters with M.E.[10] - (Video)
- May 6, 2018 - Interviewed on The ME Show podcast by Gary Burgess about the Tymes Trust charity.[11] Episode link
Online presence[edit | edit source]
See also[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
- ↑ "ME - The New Plague 2 - About Jane". ME - The New Plague 2. Retrieved February 14, 2020.
- ↑ http://www.tymestrust.org/pdfs/mecfsseidintro.pdf
- ↑ "IIMEC1". Invest in ME Research. Retrieved February 14, 2020.
- ↑ "Tymes Trust - About Us". tymestrust.org. Retrieved February 14, 2020.
- ↑ ME: the new plague, Jane Colby - First and Best in Education - 1996 ISBN-10: 1860832156, ISBN-13: 978-1860832154
- ↑ Colby, Jane. (1999). Zoe's win. Fyfield, Essex: Dome Vision. ISBN 0-9537330-0-9. OCLC 45820439.
- ↑ "ME - The New Plague 2 - Home". ME - The New Plague 2. Retrieved February 14, 2020.
- ↑ Dowsett, Elizabeth G.; Colby, Jane (1996). "Long-Term Sickness Absence Due to ME/CFS in UK Schools: An Epidemiological Study with Medical and Educational Implications" (PDF). Journal of Chronic Fatigue Syndrome. 3 (2): 29–42. doi:10.1300/J092v03n02_04.
- ↑ "Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome and the enteroviral link". Journal of Clinical Pathology. 60 (2): 125–128. February 2007. doi:10.1136/jcp.2006.042606. ISSN 0021-9746. PMC 1860612. PMID 16935964.
- ↑ "IIMEC1". Invest in ME Research. Retrieved February 14, 2020.
- ↑ "The ME Show with Gary Burgess - Jane Colby". buzzsprout.com. May 28, 2018.
