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*2014, Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME<ref>Gladwell PW, Pheby D, Rodriguez T, Poland F. (2014). Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME. ''Disability and Rehabilitation, 36'' (5):387-94. doi: 10.3109/09638288.2013.797508</ref> [https://www.ncbi.nlm.nih.gov/pubmed/23735013 (Abstract)] | *2014, Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME<ref>Gladwell PW, Pheby D, Rodriguez T, Poland F. (2014). Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME. ''Disability and Rehabilitation, 36'' (5):387-94. doi: 10.3109/09638288.2013.797508</ref> [https://www.ncbi.nlm.nih.gov/pubmed/23735013 (Abstract)] | ||
* 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network [[EUROMENE]]: a protocol for a systematic review<ref>{{Cite journal|last=Estévez-López|first=Fernando|author-link=Fernando Estévez-López|last2=Castro-Marrero|first2=Jesus|author-link2=Jesús Castro-Marrero|last3=Wang|first3=Xia|author-link3=Xia Wang-Steverding|last4=Bakken|first4=Inger Johanne|author-link4=Inger Johanne Bakken|last5=Ivanovs|first5=Andrejs|author-link5=Andrejs Ivanovs|last6=Nacul|first6=Luis|author-link6=Luis Nacul|last7=Sepúlveda|first7=Nuno|author-link7=Nuno Sepulveda|last8=Strand|first8=Elin B.|author-link8=Elin Strand|last9=Pheby|first9=Derek|author-link9=Derek Pheby|last10=Alegre|first10=José|author-link10=José Alegre|last11=Scheibenbogen|first11=Carmen|author-link11=Carmen Scheibenbogen|last12=Shikova|first12=Evelina|author-link12=Evelina Shikova|last13=Lorusso|first13=Lorenzo|author-link13=Lorenzo Lorusso|last14=Capelli|first14=Enrica|author-link14=Enrica Capelli|last15=Sekulic|first15=Slobodan|author-link15=Slobodan Sekulic|last16=Lacerda|first16=Eliana|author-link16=Eliana Lacerda|last17=Murovska|first17=Modra|author-link17=Modra Murovska|date=2018-09-01|title=Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review|url=https://bmjopen.bmj.com/content/8/9/e020817|journal=BMJ Open|language=en|volume=8|issue=9|pages=e020817|doi=10.1136/bmjopen-2017-020817|issn=2044-6055|pmc=|pmid=30181183|via=}}</ref> [https://bmjopen.bmj.com/content/8/9/e020817 (Full text)] | * 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network [[EUROMENE]]: a protocol for a systematic review<ref>{{Cite journal|last=Estévez-López|first=Fernando|author-link=Fernando Estévez-López|last2=Castro-Marrero|first2=Jesus|author-link2=Jesús Castro-Marrero|last3=Wang|first3=Xia|author-link3=Xia Wang-Steverding|last4=Bakken|first4=Inger Johanne|author-link4=Inger Johanne Bakken|last5=Ivanovs|first5=Andrejs|author-link5=Andrejs Ivanovs|last6=Nacul|first6=Luis|author-link6=Luis Nacul|last7=Sepúlveda|first7=Nuno|author-link7=Nuno Sepulveda|last8=Strand|first8=Elin B.|author-link8=Elin Strand|last9=Pheby|first9=Derek|author-link9=Derek Pheby|last10=Alegre|first10=José|author-link10=José Alegre|last11=Scheibenbogen|first11=Carmen|author-link11=Carmen Scheibenbogen|last12=Shikova|first12=Evelina|author-link12=Evelina Shikova|last13=Lorusso|first13=Lorenzo|author-link13=Lorenzo Lorusso|last14=Capelli|first14=Enrica|author-link14=Enrica Capelli|last15=Sekulic|first15=Slobodan|author-link15=Slobodan Sekulic|last16=Lacerda|first16=Eliana|author-link16=Eliana Lacerda|last17=Murovska|first17=Modra|author-link17=Modra Murovska|date=2018-09-01|title=Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review|url=https://bmjopen.bmj.com/content/8/9/e020817|journal=BMJ Open|language=en|volume=8|issue=9|pages=e020817|doi=10.1136/bmjopen-2017-020817|issn=2044-6055|pmc=|pmid=30181183|via=}}</ref> [https://bmjopen.bmj.com/content/8/9/e020817 (Full text)] | ||
*2020, The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)<ref>{{Cite journal|last=Pheby|first=Derek F.H.|author-link=Derek Pheby|last2=Araja|first2=Diana|author-link2=|last3=Berkis|first3=Uldis|author-link3=|last4=Brenna|first4=Elenka|author-link4=Elenka Brenna|last5=Cullinan|first5=John|author-link5=John Cullinan|last6=de Korwin|first6=Jean-Dominique|author-link6=Jean-Dominique de Korwin|last7=Gitto|first7=Lara|author-link7=Lara Gitto|last8=Hughes|first8=Dyfrig A|author-link8=|last9=Hunter|first9=Rachael M|author-link9=|last10=Trepel|first10=Dominic |author-link10=|last11= Wang-Steverding|first11=Xia|author-link11=Xia Wang-Steverding|date=2020-04-07|title=The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)|url=https://www.mdpi.com/2227-9032/8/2/88|journal=Healthcare|language=en|volume=8|issue=2|pages=88|doi=10.3390/healthcare8020088|issn=2227-9032|pmc=|pmid=|access-date=|quote=|via=}}</ref> - [https://www.mdpi.com/2227-9032/8/2/88/htm (Full text)] | |||
* 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology <ref>{{Cite journal|last=Estévez-López|first=Fernando|author-link=Fernando Estévez-López|last2=Mudie|first2=Kathleen|author-link2=|last3=Wang-Steverding|first3=Xia|author-link3=Xia Wang-Steverding|last4=Bakken|first4=Inger Johanne|author-link4=Inger Johanne Bakken|last5=Ivanovs|first5=Andrejs|author-link5=|last6=Castro-Marrero|first6=Jesús|author-link6=Jesús Castro-Marrero|last7=Nacul|first7=Luis|author-link7=Luis Nacul|last8=Alegre|first8=Jose|author-link8=José Alegre|last9=Zalewski|first9=Paweł|last10=Słomko|first10=Joanna|author-link10=|last11=Bolle Strand|first11=Elin|author-link11=Elin Bolle Strand|last12=Pheby|first12=Derek|author-link12=Derek Pheby|last13=Shikova|first13=Evelina|author-link13=Evelina Shikova|last14=Lorusso|first14=Lorenzo|author-link14=Lorenzo Lorusso|last15=Capelli|first15=Enrica|author-link15=Enrica Capelli|last16=Sekulic|first16=Slobodan|author-link16=Slobodan Sekulic|last17=Scheibenbogen|first17=Carmen|author-link17=Carmen Scheibenbogen|last18=Sepúlveda|first18=Nuno|author-link18=Nuno Sepúlveda|last19=Murovska|first19=Modra|author-link19=Modra Murovska|last20=Lacerda|first20=Eliana|author-link20=Eliana Lacerda|date=May 2020|title=Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology|url=https://www.mdpi.com/2077-0383/9/5/1557|journal=Journal of Clinical Medicine|language=en|volume=9|issue=5|pages=1557|doi=10.3390/jcm9051557|pmc=|pmid=|quote=|access-date=|via=}}</ref> - [https://www.mdpi.com/2077-0383/9/5/1557/htm (Full text)] | * 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology <ref>{{Cite journal|last=Estévez-López|first=Fernando|author-link=Fernando Estévez-López|last2=Mudie|first2=Kathleen|author-link2=|last3=Wang-Steverding|first3=Xia|author-link3=Xia Wang-Steverding|last4=Bakken|first4=Inger Johanne|author-link4=Inger Johanne Bakken|last5=Ivanovs|first5=Andrejs|author-link5=|last6=Castro-Marrero|first6=Jesús|author-link6=Jesús Castro-Marrero|last7=Nacul|first7=Luis|author-link7=Luis Nacul|last8=Alegre|first8=Jose|author-link8=José Alegre|last9=Zalewski|first9=Paweł|last10=Słomko|first10=Joanna|author-link10=|last11=Bolle Strand|first11=Elin|author-link11=Elin Bolle Strand|last12=Pheby|first12=Derek|author-link12=Derek Pheby|last13=Shikova|first13=Evelina|author-link13=Evelina Shikova|last14=Lorusso|first14=Lorenzo|author-link14=Lorenzo Lorusso|last15=Capelli|first15=Enrica|author-link15=Enrica Capelli|last16=Sekulic|first16=Slobodan|author-link16=Slobodan Sekulic|last17=Scheibenbogen|first17=Carmen|author-link17=Carmen Scheibenbogen|last18=Sepúlveda|first18=Nuno|author-link18=Nuno Sepúlveda|last19=Murovska|first19=Modra|author-link19=Modra Murovska|last20=Lacerda|first20=Eliana|author-link20=Eliana Lacerda|date=May 2020|title=Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology|url=https://www.mdpi.com/2077-0383/9/5/1557|journal=Journal of Clinical Medicine|language=en|volume=9|issue=5|pages=1557|doi=10.3390/jcm9051557|pmc=|pmid=|quote=|access-date=|via=}}</ref> - [https://www.mdpi.com/2077-0383/9/5/1557/htm (Full text)] | ||
Revision as of 20:24, June 18, 2020
Dr. Derek F. H. Pheby, BSc, MB, BS, LLM, MPhil, FFPH, is a Visiting Professor of Epidemiology, Buckinghamshire New University, Wycombe, England, United Kingdom. He served as the Project Coordinator of the National ME Observatory, a collaborative project involving three universities, aiming to fill gaps in research knowledge.[1] He was a former member of the Chief Medical Officer’s Working Group on CFS/ME and former trustee of Action for ME.[2]
Pheby initiated the establishment of the ME/CFS Disease Register in the UK by using a READ-code based algorithm on Electronic Medical Records which conformed to certain case definitions for ME/CFS. The ME/CFS Disease Register is used to recruit participants with ME/CFS in an unbiased way from a large population base.[3] Likewise, he is establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome.[4]
EUROMENE[edit | edit source]
In 2001, Dr. Pheby was responsible for the establishment of the European ME/CFS research network (EUROMENE), a European Union COST Action CA15111 not-for-profit research organization committed to tackling the cause and treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome[5] He now leads the EUROMENE Socio-economics working group, whose objective is to estimate the burden of ME/CFS to society and provide long-term trend estimates for societal impact.[6]
[edit | edit source]
- 2004, Risk Factors for the Development of Severe ME/CFS — A Pilot Study[7] (Abstract)
- 2005, Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge[8] (Full Text)
- 2007, The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome[9] (Abstract)
- 2009, Risk factors for severe ME/CFS[10] (Full Text)
- 2010, Severe ME/CFS in Adults-A report from the CHROME Database[11] (Full Text)
- 2011, A Disease Register for ME/CFS: Report of a Pilot Study[12] (Full Text)
- 2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care[13] (Full Text)
- 2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis[14] (Full Text)
- 2011, The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers[15] (Full Text)
- 2012, Severe ME/CFS in Adults - A report from the CHROME Database[16] (Full Text)
- 2014, Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol[4] (Full Text)
- 2014, Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME[17] (Abstract)
- 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review[18] (Full text)
- 2020, The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)[19] - (Full text)
- 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology [20] - (Full text)
Talks and interviews[edit | edit source]
- 2007, Speaker at the 2nd Invest in ME International ME Conference - Epidemiology of ME/CFS[21] - DVD available
- 2013, [1]Action for ME AGM 2013 part three - Research[22]
Online Presense[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- ↑ https://www.linkedin.com/in/derek-pheby-98440a14
- ↑ http://www.positivehealth.com/author/dr-derek-pheby
- ↑ Pheby D, Lacerda E, Nacul L, Drachler Mde L, Campion P, Howe A, Poland F, Curran M, Featherstone V, Fayyaz S, Sakellariou D, Leite JC. (2011). A Disease Register for ME/CFS: Report of a Pilot Study. BMC Res Notes, 94:139. doi: 10.1186/1756-0500-4-139. http://www.ncbi.nlm.nih.gov/pubmed/21554673
- ↑ 4.0 4.1 Nacul, L; O'Donovan, DG; Lacerda, EM; Gveric, D; Goldring, K; Hall, A; Bowman, E; Pheby, D (2014), "Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol", BMC Research Notes, 18 (10): 370, doi:10.1186/1756-0500-7-370
- ↑ http://www.euromene.eu/workinggroups/COST_CV%20and%20Biosketch_Derek%20Pheby.pdf
- ↑ http://www.euromene.eu/workinggroups/socioeconomics.html
- ↑ William Wernham, Derek Pheby & Lisa Saffron. (2004). Risk Factors for the Development of Severe ME/CFS — A Pilot Study. Journal of Chronic Fatigue Syndrome, Vol. 12, Iss. 2, pp. 47-50. doi:10.1300/J092v12n02_05
- ↑ Bowen J, Pheby D, Charlett A, McNulty C. (2005). Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge.Family Practice, 22 (4):389-93
- ↑ Osoba, Tolu; Pheby, Derek; Gray, Selena; Nacul, Luis (2007), "The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome", Journal of Chronic Fatigue Syndrome, 14 (4): 61-84, doi:10.3109/10573320802092112
- ↑ Pheby, Derek; Saffron, Lisa (2009), "Risk factors for severe ME/CFS" (PDF), Biology and Medicine, 1 (4): 50-74
- ↑ Pheby, Derek; Sneddon, Peter; Heinrich, Inge; Sneddon, M Peter A (2010), "Severe ME/CFS in Adults-A report from the CHROME Database", Bulletin of the IACFS/ME, 17 (4): 143-167
- ↑ Pheby, Derek; Lacerda, Eliana; Nacul, Luis; Drachler, Maria de Lourdes; Campion, Peter; Howe, Amanda; Poland, Fiona; Curran, Monica; Featherstone, Valerie (December 2011). "A Disease Register for ME/CFS: Report of a Pilot Study". BMC Research Notes. 4 (1). doi:10.1186/1756-0500-4-139. ISSN 1756-0500. PMC 3118997. PMID 21554673.
- ↑ Nacul, L. C., Lacerda, E. M., Pheby, D., Campion, P., Molokhia, M., Fayyaz, S., Leite, JCDC, Poland F, Howe, A and Drachler, M. L. (2011). Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Medicine, 9, 91. http://doi.org/10.1186/1741-7015-9-91
- ↑ de Carvalho Leite, JC; de L Drachler, M; Killett, A; Kale, S; Nacul, L; McArthur, M; Hong, CS; O'Driscoll, L; Pheby, D; Campion, P; Lacerda, E; Poland, F (2011), "Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis", International Journal for Equity in Health, 2 (10): 46, doi:10.1186/1475-9276-10-46
- ↑ Nacul, LC; Lacerda, EM; Campion, P; Pheby, D; Drachler, M de L; Leite, JC; Poland, F; Howe, A; Fayyaz, S; Molokhia, M (2011), "The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers", BMC Public Health, 11 (402), doi:10.1186/1471-2458-11-402
- ↑ Pheby, Derek & Sneddon, Peter & Heinrich, Inge & Peter A Sneddon, M. (2012). Severe ME/CFS in Adults-A report from the CHROME Database. Medical Statistician.
- ↑ Gladwell PW, Pheby D, Rodriguez T, Poland F. (2014). Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME. Disability and Rehabilitation, 36 (5):387-94. doi: 10.3109/09638288.2013.797508
- ↑ Estévez-López, Fernando; Castro-Marrero, Jesus; Wang, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Nacul, Luis; Sepúlveda, Nuno; Strand, Elin B.; Pheby, Derek; Alegre, José; Scheibenbogen, Carmen; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Lacerda, Eliana; Murovska, Modra (September 1, 2018). "Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review". BMJ Open. 8 (9): e020817. doi:10.1136/bmjopen-2017-020817. ISSN 2044-6055. PMID 30181183.
- ↑ Pheby, Derek F.H.; Araja, Diana; Berkis, Uldis; Brenna, Elenka; Cullinan, John; de Korwin, Jean-Dominique; Gitto, Lara; Hughes, Dyfrig A; Hunter, Rachael M; Trepel, Dominic; Wang-Steverding, Xia (April 7, 2020). "The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)". Healthcare. 8 (2): 88. doi:10.3390/healthcare8020088. ISSN 2227-9032.
- ↑ Estévez-López, Fernando; Mudie, Kathleen; Wang-Steverding, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Castro-Marrero, Jesús; Nacul, Luis; Alegre, Jose; Zalewski, Paweł; Słomko, Joanna; Bolle Strand, Elin; Pheby, Derek; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Scheibenbogen, Carmen; Sepúlveda, Nuno; Murovska, Modra; Lacerda, Eliana (May 2020). "Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology". Journal of Clinical Medicine. 9 (5): 1557. doi:10.3390/jcm9051557.
- ↑ http://www.investinme.org/IIMEC2.shtml
- ↑ https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three - Research