UK Parliament Commons Chamber debate 24th January 2019

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Jump to: navigation, search
Appropriate M.E. Treatment Debate. UK Parliament, Jan 24th 2019.

Carol Monaghan MP organized a Backbench debate in the UK parliament to discuss the appropriate diagnosis and treatment for ME/CFS patients, and the lack of biomedical research funding.[1][2] It followed on two debates in 2018 and introduced a motion on "Appropriate ME Treatment", which passed unanimously.

Appropriate M.E. Treatment Motion[edit | edit source]

The motion debated was;

Appropriate ME Treatment

That this House calls on the Government to provide increased funding for biomedical research for the diagnosis and treatment of ME, supports the suspension of Graded Exercise Therapy and Cognitive Behaviour Therapy as means of treatment, supports updated training of GPs and medical professionals to ensure that they are equipped with clear guidance on the diagnosis of ME and appropriate management advice to reflect international consensus on best practice, and is concerned about the current trends of subjecting ME families to unjustified child protection procedures.


The motion was passed unanimously.[1][3][4]

Supporting MPs[edit | edit source]

Government representative[edit | edit source]

  • Steve Brine, Parliament Undersecretary of State for Health and Social Care (Conservative)

MPs who contributed[edit | edit source]

Other MPs in attendance[edit | edit source]

Over 40 MPs attended the debate, including the 27 MPs who spoke.[3]

News and commentary[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. 1.01.11.2 Hansard | UK Parliament (Jan 24, 2019). "Appropriate ME Treatment | 24 January 2019 Volume 653". hansard.parliament.uk. Retrieved Jan 25, 2019. 
  2. UK Parliament (Jan 24, 2019). "Appropriate ME Treatment UK Parliament debate. Jan 24th 2019". YouTube | #MEAction UK. 
  3. 3.03.1 #MEAction (Jan 25, 2019). "Historic Parliamentary Debate Shaped by People with ME". #MEAction. Retrieved Jan 26, 2019. 
  4. UK Parliament (Jan 2019). "Research briefing summary | Appropriate ME Treatment". Retrieved Jan 27, 2019. 
  5. Tuller, David (Jan 28, 2018). "Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME". Virology blog. Retrieved Jan 28, 2019. 

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

Graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

Single nucleotide polymorphism (SNP) - A single nucleotide polymorphism (SNP, pronounced "snip") is a potential genetic mutation that occurs in a single spot in the human genome; a difference in a single DNA building block. SNPs are often represented by an "rs" number, such as "rs53576".

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.