US Action Working Group

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The US Action Working Group (USAWG) is a group of American organizations and activists.

The group was formed by members who met in person in Washington at the August 2015 CFSAC meeting. They announced their formation on December 22, 2015.[1]

History[edit | edit source]

Actions[edit | edit source]

Letters[edit | edit source]

Congressional outreach[edit | edit source]

Rules & Organization[edit | edit source]

Group decisions are non-binding. Members and individuals choose whether to opt-in to group actions on a case by case basis.[citation needed] Not all members opt in. For example, #MEAction elected not to sign on to the November 2015 thank you letter to the National Institutes of Health after only 74.5% of its members voted to support that action.[6]

Current members[edit | edit source]

Patient Organizations[edit | edit source]

Bateman Horne Center, Inc.

Connecticut CFIDS Association, Inc.

ImmuneDysfunction.org dba The Vermont CFIDS Association, Inc

Massachusetts CFIDS/ME & FM Association

The Myalgic Encephalomyelitis Action Network (#MEAction)

Open Medicine Foundation (OMF)

New Jersey ME/CFS Association, Inc.

PANDORA Org

Phoenix Rising

Simmaron Research

Solve ME/CFS Initiative

Wisconsin ME and CFS Association, Inc.

Patient blogs[edit | edit source]

Health Rising (Cort Johnson)

OccupyCFS (Jennie Spotila)

Onward Through the Fog (Erica Verrillo)

Race to Solve ME/CFS (Claudia Goodell)

Speak Up About ME (Denise Lopez-Majano)

Independent Advocates[edit | edit source]

Lily Chu. MD, MSHS

Mary Dimmock

Robert and Courtney Miller

Donna Pearson

Criticism[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.