Simon Del Favero
Simon Del Favero is an Australian citizen who developed myalgic encephalomyelitis (ME) after a severe bout of glandular fever in 2011. He was also diagnosed with postural orthostatic tachycardia syndrome (POTS) in 2014. Before becoming ill, Del Favero had studied architecture at the University of Sydney and was working part-time as an architectural model maker.
Del Favero travels to the US to see Dr. Hector Bonilla for the management of his ME. In 2017, he met Prof. Ron Davis, the leader of the Open Medicine Foundation's End ME/CFS Project. His experiences with ME are featured as part of Emerge Australia's Member Stories campaign.
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myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.