Prevalence of myalgic encephalomyelitis and chronic fatigue syndrome

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

The prevalence of myalgic encephalomyelitis and chronic fatigue syndrome is estimated at 17-24 million worldwide.[1] In 2015, the Institute of Medicine (IOM) Report from the United States National Academy of Sciences estimated there were between 836,000 and 2.5 million ME/CFS patients in the U.S.[2] A 2018 study based on insurance claims gave "a rough estimate for the number of patients who may be diagnosed with ME or CFS in the U.S." as between 1.7 million and 3.38 million.[3] Via a machine learning model, the same study predicted the prevalence of ME in the U.S. as roughly 2.8 million (857 out of every 100,000 people).[3]

The IOM Report estimated that between 84% and 91% of patients are not diagnosed.[4][5]

Prevalence of ME/CFS[edit | edit source]

Country Prevalence Population % Comments
Worldwide 17,000,000
Australia 100,000
Canada 561,000 1.9%
Germany 300,000 0.37%
Japan 300,000
New Zealand 20,000 0.45%
Nigeria 0.68%
England and Wales 250,000 0.4%
United States 1,000,000 0.3%

Notable studies[edit | edit source]

  • 2011, CFS Prevalence and Risk Factors Over Time[6] (Full Text)
  • 2015, Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness[7] (Full Text)
  • 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe-the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review.[8] (Full text)
  • 2018, Estimating Prevalence, Demographics, and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning[3] (Full text)
  • 2020, Systematic review and meta-analysis of the prevalence of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)[9]

See also[edit | edit source]

References[edit | edit source]

  1. "How Many People Have ME/CFS? – American ME and CFS Society". Retrieved January 31, 2019.
  2. "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining and Illness - Report Brief" (PDF). nataionalacademies.org. 2015.
  3. 3.0 3.1 3.2 Valdez, Ashley R.; Hancock, Elizabeth E.; Adebayo, Seyi; Kiernicki, David J.; Proskauer, Daniel; Attewell, John R.; Bateman, Lucinda; DeMaria, Alfred; Lapp, Charles W.; Rowe, Peter C.; Proskauer, Charmian (January 8, 2019). "Estimating Prevalence, Demographics, and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning". Frontiers in Pediatrics. 6. doi:10.3389/fped.2018.00412. ISSN 2296-2360.
  4. "What is ME/CFS? | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. January 18, 2019. Retrieved January 31, 2019.
  5. "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Key Facts" (PDF). nationalacademies.org. National Academies of Medicine. 2015.
  6. Jason, L. A., Porter, N., Hunnell, J., Rademaker, A., & Richman, J.A. (2011). CFS Prevalence and Risk Factors Over Time. Journal of Health Psychology, 16(3), 445–456. http://doi.org/10.1177/1359105310383603
  7. "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness" (PDF). National Academies. 2015.
  8. Murovska, Modra; Lacerda, Eliana; Sekulic, Slobodan; Capelli, Enrica; Lorusso, Lorenzo; Shikova, Evelina; Scheibenbogen, Carmen; Alegre, Jose; Pheby, Derek (September 1, 2018). "Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review". BMJ Open. 8 (9): e020817. doi:10.1136/bmjopen-2017-020817. ISSN 2044-6055. PMID 30181183.
  9. Lim EJ, Ahn YC, Jang ES, Lee SW, Lee SH, Son CG (February 2020). "Systematic review and meta-analysis of the prevalence of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)". Journal of Translational Medicine. 18 (1): 100. doi:10.1186/s12967-020-02269-0. PMC 7038594. PMID 32093722.