Susan Kreutzer, is a former attorney who has lived with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since coming down with the flu in 1991. In 2013, she organized a petition drive with other ME/CFS activists to demand the U.S. Department of Health and Human Services (HHS) increase funding for research into ME/CFS, to adopt the Canadian Consensus Criteria (CCC) to define the illness, to cancel the IOM (Institute of Medicine) contract to define ME/CFS, and to officially drop the misleading name “chronic fatigue syndrome” in favor of the term used by the World Health Organization, myalgic encephalomyelitis (ME).
On Monday, December 9, 2013, Kreutzer and a small group of ME/CFS activists gathered in front of the San Francisco Federal Building to protest the IOM contract. Jeff Kreutzer, and Ed Burmeister displayed a seven foot by six foot banner with 3,000 signatures. A second petition also with nearly 3,000 signatures, started last summer by Mary Dimmock was on display, as well as a flag display which Susan arranged representing the home states and countries of those who had signed the petitions – all 50 states, the District of Columbia, Puerto Rico, and 34 countries spanning the globe. The next day, Kreutzer went to Washington, DC, despite a snow storm, to present the petitions to the HHS Secretary. She also delivered the the copies of the petitions to several Comgressman.
Quotes[edit | edit source]
“For people who are in bed, and who can’t get out here, we are going to find a way for you to have a voice.” “We will speak our truth.”
CFSAC Testimony[edit | edit source]
- June 2012, Public Testimony at CFSAC meeting
Online presence[edit | edit source]
- 2013, Video of Susan Kreutzer delivering petition with nearly 6,000 signatures to HHS
- 2013, Article about Susan Kreutzer delivering her petition to HHS
- 2014, San Francisco Gate newspaper features Kreutzer - Findings of brain anomalies may shed light on chronic fatigue
References[edit | edit source]
Myalgic encephalomyelitis or chronic fatigue syndrome, often used when both illnesses are considered the same.