Susan Kreutzer

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Susan Kreutzer, is a former attorney who has lived with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since coming down with the flu in 1991.[1] In 2013, she organized a petition drive with other ME/CFS activists to demand the U.S. Department of Health and Human Services (HHS) increase funding for research into ME/CFS, to adopt the Canadian Consensus Criteria (CCC) to define the illness, to cancel the IOM (Institute of Medicine) contract to define ME/CFS, and to officially drop the misleading name “chronic fatigue syndrome” in favor of the term used by the World Health Organization, myalgic encephalomyelitis (ME).[2]

On Monday, December 9, 2013, Kreutzer and a small group of ME/CFS activists gathered in front of the San Francisco Federal Building to protest the IOM contract. Jeff Kreutzer, and Ed Burmeister displayed a seven foot by six foot banner with 3,000 signatures. A second petition also with nearly 3,000 signatures, started last summer by Mary Dimmock was on display, as well as a flag display which Susan arranged representing the home states and countries of those who had signed the petitions – all 50 states, the District of Columbia, Puerto Rico, and 34 countries spanning the globe.[3] The next day, Kreutzer went to Washington, DC, despite a snow storm, to present the petitions to the HHS Secretary. She also delivered the the copies of the petitions to several Comgressman.[4]

Quotes[edit | edit source]

“For people who are in bed, and who can’t get out here, we are going to find a way for you to have a voice.” “We will speak our truth.”[5]

CFSAC Testimony[edit | edit source]

Online presence[edit | edit source]

References[edit | edit source]

Myalgic encephalomyelitis or chronic fatigue syndrome, often used when both illnesses are considered the same.

Myalgic encephalomyelitis or M.E. has different diagnostic criteria to chronic fatigue syndrome; neurological symptoms are required but fatigue is an optional symptom.<ref name="ICP2011primer">{{Citation

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.