Ed Burmeister

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Ed Burmeister is married to Jeannette Burmeister and advocates for adequate care and treatment for patients of on behalf of his wife. He practices law for Baker & McKenzie.

Talks and interviews[edit | edit source]

HHS/CFSAC testimony[edit | edit source]

Public letter re: indifference to those with ME/CFS[edit | edit source]

In April 2015, following hip surgery, he wrote a poignant letter expressing the contrast of care he received compared to his chronically ill wife:[1][2]

Online presence[edit | edit source]

References[edit | edit source]

Chronic fatigue syndrome advisory committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.