Phil Murray was diagnosed with ME/CFS in 1997, and has been mainly in remission since 2007. Phil has worked extensively with Westcare UK, sat on the ME patient advisory group for the ME/CFS Epidemiology and Genomics Alliance (MEGA), sponsored by ME Research UK, attended the NICE guidelines scoping meeting in 2018, and is co-organiser for the Bristol Millions Missing protests, in 2018 & 2019. Phil has appeared in local radio & TV speaking for the need for more biomedical research into the illness, and remains on the Patient Advisory group to the UK CFS/ME Research Collaborative (CMRC).
An interview from Phil's 1998 appointment at Bristol's Royal Infirmary was featured in the medical training app Speaking Clinically, under "General Medicine, "Chronic Fatigue Syndrome," and "The Exhausted Athlete". It featured the clear reasons for post-exertional malaise, and the delay before the effects are felt.
Talks and interviews[edit | edit source]
Online presence[edit | edit source]
See also[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
- "Phil Murray, Trustee, Action for ME at Action for M.E." LinkedIn. December 26, 2019.
- "#MillionsMissing: the campaign for ME equality". The Bristol Cable. May 10, 2018. Retrieved December 26, 2019.
- ME, Action for. "Improving lives, inspiring change: AGM & annual report". Action for ME. Retrieved December 26, 2019.
- ME, Action for. "Board of Trustees". Action for ME. Retrieved December 26, 2019.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.