Kim McCleary

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K. Kim McCleary, also known as K. Kimberly Kenney, is the Managing Director of FasterCures, a Center of the Milken Institute that works to speed and improve the medical research system.[1]

From 1991 until June 2013, she served as President and CEO of the Chronic Fatigue and Immune Dysfunction Syndrome Association of America, often abbreviated CFIDS Association of America or CAA, (now the Solve ME/CFS Initiative). During her tenure the Association was instrumental in developing the 1998 policy ruling for the Social Security Administration that first recognized CFS as a disabling condition; fought to create CFSAC, the ME/CFS advisory committee to the Health and Human Services Department; exposed the CDC's misappropriation of $12.9 millions of dollars designated for CFS program and worked with the agency and members of Congress, including, Senator Harry Reid, to restore those funds to research and awareness activities; helped launch the Research Institute Without Walls with Dr. Suzanne Vernon; organized lobby days; and led numerous fundraising and public awareness campaigns.[2][3]

As with so many of the illness's most dedicated champions, McCleary has a family member who has ME/CFS.[4]

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ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

Chronic fatigue syndrome advisory committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.