Jessica Taylor-Bearman is a British woman that has lived with Myalgic Encephalomyelitis (ME) since childhood. In 2010 she founded and currently operates Share A Star Charity to "bring back the sparkle for children and teenagers who are fighting life threatening or chronic illnesses." She writes two blogs, JayTay and The World of One Room. Because she suffers from photophobia she titled her memoir A Girl Behind Dark Glasses.
Jessica Taylor got married to Samuel Bearman on Saturday, April 29, 2017 in Upnor Church, Kent, UK and is now known as Jessica Taylor-Bearman.
Awards and nominations[edit | edit source]
- 2016, Jessica was awarded Points of Light February, 2016. Prime Minister David Cameron said: “With Share a Star, Jessica has shown a remarkable commitment to supporting other young people who face serious ill health, or have very ill siblings. The peer support and family trips she organises have brought much-needed joy to hundreds of severely unwell young people and their families, despite her own ill health. To those who have received her kindness and empathy she is a true point of light.” Local MP, Kelly Tolhurst said: “I am delighted that Jessica’s inspiration and dedication has been recognised with a Point of Light Award. Jessica and Share a Star are a credit to our local area having genuinely made a difference to hundreds of severely unwell children and their families. I deeply admire their invaluable work and fighting spirit and I would like to wish continued achievement to Jessica and her team.”
- 2017, Runner up in Pride in Medway, Courage
- 2018, Nominated for Pride in Medway
Online presence[edit | edit source]
- A Girl Behind Dark Glasses Facebook
- A Girl Behind Dark Glasses
- Contact Jessica
References[edit | edit source]
- "How the Star was Born". Share A Star. Apr 8, 2012. Retrieved Oct 11, 2018.
- "My Story So Far - Jessica Taylor-Bearman Author of A Girl Behind Dark Glasses". JayTay.co.uk. Retrieved Oct 11, 2018.
- "The World of One Room". www.facebook.com. Retrieved Oct 11, 2018.
- Taylor-Bearman, Jessica (Jul 1, 2017). A Girl Behind Dark Glasses. Hashtag Press. ISBN 9781999805357.
- "Bringing back the sparkle - Points of Light". Points of Light. Feb 16, 2016. Retrieved Oct 11, 2018.
- Freeman, Clare (Feb 18, 2017). "Pride in Medway 2017 certificate presentation evening". Kent Online. Retrieved Oct 11, 2018.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.