Podcasts[edit | edit source]
PACE trial[edit | edit source]
- This 20 min. podcast reviews the PACE trial's outcome switching, Freedom of Information Act (FOIA) denial and money trail, and conflict of interest (COI) problems based on articles by Julie Rehmeyer in SLATE and David Tuller in Virology blog.
Interview with Julie Rehmeyer[edit | edit source]
- "In her new book, "Through the Shadowlands," science journalist Julie Rehmeyer chronicles her odyssey through a mysterious illness. After encountering debilitating fatigue, Rehmeyer got no answers from medical doctors other than a diagnosis of CFS--Chronic Fatigue Syndrome. Even the slightest exertion prompted severe exacerbations. After one particularly incapacitating bout, she undertook an extreme measure--a desert retreat to Death Valley. There she discovered that one component of her illness was mold sensitivity. Rehmeyer describes how volatile gasses emitted by molds can cripple the nervous systems of susceptible individuals. She emphasizes that there's no "one-size-fits-all" solution to CFS; different patients respond to different measures like diet, supplements, hormonal support, or immunomodulators. Rehmeyer has become a vocal advocate for CFS research, and briefs us on the latest advances. She also offers a critique of a much-maligned study--PACE--which concludes that CFS patients just need exercise and cognitive behavioral therapy to recover."
- "Dr. Hoffman continues his conversation with science journalist Julie Rehmeyer, author of "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand", who chronicles her odyssey through a mysterious illness".
Online presence[edit | edit source]
- Twitter - Dr. Ronald Hoffman
- Facebook - Dr. Ronald Hoffman
- Stitcher Podcast
- Subscribe Podcasts
References[edit | edit source]
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.