ACT ME/Chronic Fatigue Syndrome Society

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

ACT ME/Chronic Fatigue Syndrome Society or ME/CFS ACT is an Australian patient group for people with ME/CFS and Fibromyalgia in the Canberra area.[1][2]

Aims[edit | edit source]

To "provide support and information for people affected by Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) and Fibromyalgia Syndrome (FMS) in the Canberra region".[1]

Services[edit | edit source]

Services include:

  • an in-person self help course
  • Telephone Information and Support Service (TISS)
  • Provide information about ME/CFS and fibromyalgia to members, medical practitioners and the public
  • Chat Support Groups for people living with fatiguing conditions
  • fundraising for research into ME/CFS
  • information sessions and events to raise awareness in the ACT region[3]

Notable people[edit | edit source]

Patrons[edit | edit source]

Medical advisors[edit | edit source]

Research/Notable studies[edit | edit source]

History[edit | edit source]

The patient group Build a Better Me: Arthritis, Pain Support and ME/CFS ACT merged and are now one organisation.[3]

Funding[edit | edit source]

Interviews and articles[edit | edit source]

Online presence[edit | edit source]

  • Website
  • Facebook
  • Twitter
  • YouTube channel
  • Instagram
  • LinkedIn
  • Email: info@arthritisact.org.au
  • Telephone: +61 1800 011 041
  • Address: PO Box 717, Mawson, ACT 2607

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. ↑ 1.0 1.1 https://www.facebook.com/ACT-MEChronic-Fatigue-Syndrome-Society-339195612946443/
  2. ↑ https://www.mecfscanberra.org.au/
  3. ↑ 3.0 3.1 https://www.mecfscanberra.org.au/about-the-society/

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

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