Talk:List of news articles on ME and CFS

News article formatting

See MEpedia:News article formatting

'''Article Title'''<ref>{{citation goes here}}</ref>

''Newspaper Name (and section if inc.)'' By: Author Name. (MMM DD, YYYY)

If article is paywalled, state here and link to ME Association copy if available.

"Quote."

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https://fashionjournal.com.au/life/i-was-diagnosed-with-chronic-fatigue-syndrome/ I was diagnosed with Chronic Fatigue Syndrome Sophie McRath (Apr 18, 2020) Francesca Steele Wednesday January 12 2022

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What it's like to have Chronic Fatigue Syndrome, a misunderstood illness that leaves people in wheelchairs and derails entire careers

BUSINESS INSIDER By: ALISON MILLINGTON. (Feb 18, 2020)

"After months of struggling both mentally and physically to do simple tasks, dealing with constant, extreme exhaustion that wouldn't go away no matter how much I slept, in 2015, a doctor told me I had Chronic Fatigue Syndrome (CFS)."
"Clare Josa, 46, believes her CFS was brought on by "having four fillings replaced in four weeks while living in a student flat with no central heating.

“I was at university when I got ME,” the author of "Ditching Imposter Syndrome" said. “I had to accept I had a problem when I woke up one morning and couldn't get out of bed, despite having an exam...”

That was 20 years ago, and Josa is still living with the illness."

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https://www.sheffieldtelegraph.co.uk/health/coronavirus/sheffield-me-group-warning-covid-19-patients-2846732 Sheffield ME group warning to COVID-19 patients By: Julia Armstrong. (May 11, 2020) - no longer online

Getting COVID-19 when you already have CFS: to add

• https://www.oregonlive.com/coronavirus/2020/04/seabiscuit-author-laura-hillenbrand-on-coronavirus-symptoms-it-felt-like-i-was-breathing-through-gauze.html ‘Seabiscuit’ author Laura Hillenbrand on coronavirus symptoms: It felt ‘like I was breathing through gauze’ By: Noelle Crombie. (10 Apr 2020) - about Laura Hillenbrand

COVID-19 Post-viral fatigue syndrome and CFS articles to add

• https://www.telegraph.co.uk/global-health/science-and-disease/coronavirus-could-cause-secondary-illnesses-including-chronic/ Coronavirus could cause secondary illnesses including chronic fatigue syndrome, experts warn Sarah Newey (May 2, 2020)

~Njt (talk) 08:56, May 6, 2020 (EDT)

Old messages

content hidden

We should add WSJ article *2016: Patients, Scientists Fight Over Research-Data Access, Amy Dockser Marcus, Wall Street Journal, 7 Mar 2016 Olliec (talk) 02:16, 8 March 2016 (PST) Just double-checked and it is added. Thanks.--DxCFS (talk) 11:16, 30 August 2016 (PDT) Not sure where to add: I got ME and thought: ‘This is the end’ (Original The Times link behind paywall) --Samsara (talk) 18:27, 6 November 2016 (PST) It can go under About ME/CFS and Patients and under a new GET/CBT plugged in after illness as I think she discusses CBT not being of help. You can include Times and just note after BY: line that it is Paywalled.--DxCFS (talk) 19:42, 6 November 2016 (PST) I think I'm going to go through and change all the references to the standard citation format used for news articles. That way this page can be used to easily copy/paste references to other pages across MEpedia. At the same time I'd like to add the date of each article in parenthesis after the author name. I think this is important information and should be included.--Samsara (talk) 07:57, 30 November 2016 (PST)

Two new articles to add ~ done

• Marcel Robert's view is a darkened room in a rest home: Life with chronic illness ME Full text

NEW ZEALAND HERALD By: Natalie Akoorie. (02-Nov-2019)

"It didn't work. In fact Robert grew sicker."

"Marcel Robert now lives in a quiet, darkened room in a rest home."

"Following medical advice I paid for meals to be delivered and home help as Southern Health refused to believe he had a physical illness, saying they didn't recognise ME," Ron says."

As his son grew sicker, he watched on helpless, and says apart from Vallings, other doctors did not believe he had a physical illness. There's another code within DNA which responds to environment and things that are happening to you and can change in diseases, called the epigenetic code... We've looked at 30 million sites across their whole genome, to look for changes in these little chemical tags, and they change the function of the DNA in terms of whether information gets out or not."

• Chronic fatigue syndrome: Gradually figuring out what’s wrong

HARVARD HERALD LETTER By: Anthony Komaroff, Editor in Chief. (14-Nov-2019)

~Njt (talk) 17:58, November 26, 2019 (EST)

Article to add: Dec 28, 2019 - done

• Chronic fatigue syndrome sufferer considered euthanasia after lack of NHS help

DAILY RECORD By: Marcello Mega. (28-Dec-2019)

~Njt (talk) 16:19, December 28, 2019 (EST)

Headings for science - change -- ~Njt (talk) 19:49, May 29, 2020 (EDT)

I think the current headings for science aren't helpful - I would like to see a heading for each main area of research or each major bodily system. At the moment we have:

5.1 PACE trial *5.2 PACE Trial data release *5.3 Research *5.4 Brain images *5.5 Chemical signature in blood *5.6 ME/CFS and COVID-19

6.1 Funding *6.2 PACE trial *6.3 PACE trial data release *6.4 Research *6.5 Brain imaging *6.6 Chemical signature in blood *6.7 Advocacy *6.8 Post-exertional Malaise *6.9 Advances in understanding ME

I would like to see something like:

• Brain and neurological
• Immune system and Infections
• Metabolism, energy and endocrine
• Circulation and heart
• Biomarkers and blood
• Drugs and Treatments

Thoughts? User:Kmdenmark User:Aletheia2020 User:JaimeS User:JenB

See myalgic encephalomyelitis.

See chronic fatigue syndrome.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

See Graded exercise therapy.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

See cognitive behavioral therapy.

an organism's complete set of DNA, including all of its genes

genome an organism's complete set of DNA, including all of its genes

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.