Portal:History and People/Selected advocates

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Selected advocatess

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These are selected articles about advocates related, which appear on Portal:History and People.




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David tuller.jpg
David M. Tuller, DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California. Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley's joint masters program in public health and journalism. He's worked as a reporter and editor for ten years at the San Francisco Chronicle, served as health editor at Salon.com and frequently writes about health for The New York Times. An experienced public health activist who was formerly active with ACT UP/NY, David Tuller covered the PACE trial results for The New York Times as health editor in February 2011 and later became an outspoken critic of the trial's methods and findings, publishing extensively on it. (more...)



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Source: www.me-net.combidom.com
Tom Kindlon is known for his extensive analysis, publications and correspondence with ME/CFS researchers, particularly in relation to the PACE trial. He became ill with Myalgic Encephalomyelitis in February 1989, when he was just 16 years old. Kindlon is Assistant Chairperson of the Irish ME/CFS Association. (more...)



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Photo from ProHealth
Ryan Prior is an advocate who wrote and co-directed the documentary, Forgotten Plague, based on his personal experiences as well as others living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The topics of science and politics of ME/CFS were also included. He founded the Blue Ribbon Foundation. (more...)



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Source:phoenixrising
Robert Miller (Bob Miller) is a former labor organizer who advocates for FDA approval of Ampligen while living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). He has been treated off and on with Ampligen since 1999 and went on a hunger strike to demand clinical trials for Ampligen. (more...)



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Source: healthrising.org
Mary Dimmock worked in the pharmaceutical industry but later became a patient advocate after her son, Matthew Lazell-Fairman, became sick in 2010. In 2015, Mary published an extensively referenced advocacy paper with her son, documenting the history of the disease since the 1980s, "Thirty Years of Disdain: How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis." She has worked on and supported countless advocacy projects, collaborating with numerous individuals and organizations. (more...)



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Rivka Solomon is a writer and a patient advocate for myalgic encephalomyelitis (ME). She resides in Massachusetts. She became ill with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in 1990 while studying international relations at graduate school and has remained ill since. She has coordinated protests and has written articles about ME/CFS. (more...)



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Jamison Graham Hill is an author and, prior to becoming stricken with severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a bodybuilder and certified personal trainer. He is featured in the 2015 documentary, Forgotten Plague, by Ryan Prior and Nicole Castillo. In addition to writing a book on fitness, he has written articles for Ultra-FIT, Physique Magazine, ExtraFit Magazine, World Physique Magazine, and Inside Fitness.' (more...)



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Jennie Spotila has been living with ME/CFS since 1994 and is an advocate who previously practiced law. She blogs at Occupy M.E. She served on the Board of Directors of The CFIDS Association of America (now called Solve ME/CFS Initiative) from 2006 to 2011, and as Chairman in 2008 and 2009. She has testified before the Chronic Fatigue Syndrome Advisory Committee on multiple occasions. (more...)



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Source:ericaverrillo.com
Erica Verrillo is a prolific writer and activist for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), having written two well-received books on ME/CFS, a popular blog, Onward Through the Fog, and serving as the ME/CFS editor for ProHealth. She has lived with ME/CFS since 1987. She is the founder of the American ME and CFS Society (AMMES). (more...)



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Photo from ProHealth
Jennifer Brea is a filmmaker, activist and ME patient. Along with Beth Mazur, she co-founded #MEAction. Jennifer is also founder of MEpedia and director of Unrest, an award-wining documentary film about living with the illness. (more...)