The MEAction Network

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#MEAction (The Myalgic Encephalomyelitis Action Network) is a worldwide ME/CFS patient advocacy group co-founded May 12, 2015 by Jennifer Brea and Beth Mazur.

Its focus is on empowering patients to take action to improve the research and treatment situation, through local affiliate groups in countries around the world. #MEAction runs special interest groups focused on science & research, public education and press relations.


History[edit]

On July 24, 2016, #MEAction made a policy change where they would adopt ME for the name for future communications about the disease except where the name CFS needs to be mentioned.[1]

Notable projects[edit]

The Millions Missing protests were created by MEAction.

MEpedia was launched by MEAction.

Actions[edit]

PACE trial[edit]

US Congressional Outreach[edit]

Tools[edit]

Petitions[edit]

Organization[edit]

Learn more[edit]

See also[edit]

Online presence[edit]

References[edit]

  1. #MEAction Policy Change: ME, not ME/CFS


The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history