Valentina Bodina Cohen

Valentina Bodina Cohen, originally from Italy, came down with infectious Mononucleosis in 1981 which progressed to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) at the age of 14. She was finally diagnosed in 2011 by Dr. Andreas Kogelnik of the Open Medicine Institute in California. Having to struggle to study and function, she managed to receive her J.D. from Universita' degli Studi, Milano, Italy.

She spearheaded the use of the hashtag #pwme for People with ME on Twitter.

Talks and interviews

Cohen was one of the many patients and advocates interviewed by Jennifer Brea for the documentary Unrest.

Advocacy letter

One of the signers of: An Open Letter from ME/CFS Advocates to the Honorable Kathleen Sebelius, U.S. Secretary of Health and Human Services

Online presence

• Twitter

See also

• Unrest

See myalgic encephalomyelitis.

See chronic fatigue syndrome.

PwME Acronym for a "Person with ME" (myalgic encephalomyelitis).