Valentina Bodina Cohen

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Valentina Bodina Cohen, originally from Italy, came down with infectious Mononucleosis in 1981 which progressed to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) at the age of 14.[citation needed] She was finally diagnosed in 2011 by Dr. Andreas Kogelnik of the Open Medicine Institute in California. Having to struggle to study and function, she managed to receive her J.D. from Universita' degli Studi, Milano, Italy.[citation needed]

She spearheaded the use of the hashtag #pwme for People with ME on Twitter.[citation needed]

Talks and interviews[edit | edit source]

Cohen was one of the many patients and advocates interviewed by Jennifer Brea for the documentary Unrest.

Advocacy letter[edit | edit source]

One of the signers of: An Open Letter from ME/CFS Advocates to the Honorable Kathleen Sebelius, U.S. Secretary of Health and Human Services

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

PwME - Acronym for a "Person with ME" (myalgic encephalomyelitis).

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.