Valentina Bodina Cohen

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Jump to: navigation, search

Valentina Bodina Cohen, originally from Italy, came down with infectious Mononucleosis in 1981 which progressed to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) at the age of 14.[citation needed] She was finally diagnosed in 2011 by Dr. Andreas Kogelnik of the Open Medicine Institute in California. Having to struggle to study and function, she managed to receive her J.D. from Universita' degli Studi, Milano, Italy.[citation needed]

She spearheaded the use of the hashtag #pwme for People with ME on Twitter.[citation needed]

Talks and interviews[edit | edit source]

Cohen was one of the many patients and advocates interviewed by Jennifer Brea for the documentary Unrest.

Advocacy letter[edit | edit source]

One of the signers of: An Open Letter from ME/CFS Advocates to the Honorable Kathleen Sebelius, U.S. Secretary of Health and Human Services

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

PwME - Acronym for a "Person with ME" (myalgic encephalomyelitis).

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.