Severe ME/CFS: A Guide to Living
|Subject||Patient guide, Carer's guide|
Severe ME/CFS: A Guide to Living is a book written by Emily Collingridge, a severe ME patient, for patients, caregivers, friends and relatives of ME/CFS patients and those who are interested in the disease especially in its most severe form. It is available at cost.
Publisher's synopsis[edit | edit source]
(This synopsis was provided by the publisher for promotional purposes. For book reviews, please see Links section below.)
This book provides help to patients with severe ME (Myalgic Encephalomyelitis) as well as the loved ones and professionals caring for them.
This comprehensive reference book has been written by Emily Collingridge, a patient with over twelve years experience of severe ME, in consultation with over thirty patients, carers, friends, relatives and health professionals. Although published by the Association of Young People with ME (AYME) as well as containing advice for children and young people, the entire book is suitable for adults of all ages. A4 in size, there are over 130 jam packed pages with guidance on every conceivable area of life with severe ME as well as specific help for carers, partners, siblings, parents, grandparents, friends, doctors, nurses, occupational therapists, physiotherapists, dietitians, speech language therapists, psychologists, social workers and home tutors.
Links[edit | edit source]
- Severe ME/CFS: A Guide to Living - Facebook page
- Severe ME/CFS: A Guide to Living - Official website
- Severe ME/CFS: A Guide to Living - AYME Shop
- Severe ME/CFS: A Guide to Living - Goodreads
References[edit | edit source]
myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
Association of Young People with ME (AYME) - AYME was a UK national charity supporting children and young people affected by ME/CFS with members under 25. It's lead medical advisor was Doctor Esther Crawley. In April 2017 the charity merged with Action for ME, forming its Children's Services department run by Mary-Jane Willows.