Medical Abuse In ME Sufferers (MAIMES)

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Medical Abuse in ME Sufferers (or MAIMES) is a petition created by British doctor Sarah Myhill that calls for a UK public enquiry into the medical abuse and neglect experienced by British patients with myalgic encephalomyelitis (often called chronic fatigue syndrome or (CFS/ME in the UK).[1]

Medical neglect[edit | edit source]

Dr. Nigel Speight on Paediatric ME/CFS (2014). Stockholm, Sweden.


Notable people[edit | edit source]

Dr Sarah Myhill started the petition.

Talks and interviews[edit | edit source]

Learn more[edit | edit source]

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References[edit | edit source]

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.