ME Auckland

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ME Auckland

ME Auckland, also known as ME/CFS Support (Auckland), is a patient group which provides support to patients based in and around Auckland with ME/CFS/fibromyalgia and their families and carers.

Aims[edit | edit source]

ME Auckland aims to improve the well-being of individuals suffering from ME/CFS and/or Fibromyalgia in the Auckland region by providing information and advisory services and support for residents together with their caregivers and families/whanau. It also aims to promote an awareness and understanding of these illnesses.[1]

Services[edit | edit source]

  • Two field workers who help to advocate for members, identify assistance services available for members, provide information about ME/CFS to members' doctors, schools, and families, and organise local support groups
  • Provision of information about ME/CFS and how to manage it
  • Provision of several local support groups in Auckland
  • Coordination of petitions and engagement with healthcare bodies on behalf of its members[2]

Membership and all services provided are free of charge.[3]

Notable people[edit | edit source]

History[edit | edit source]

ME Auckland was founded in 2013, when the coordinators of the West Auckland, East Auckland and North Shore support groups recognised the need to bring Auckland wide support to those with ME/CFS.[1] It has been a registered charity since February 2014.[4]

Funding[edit | edit source]

ME Auckland is a registered charity. It's charity number is CC50218.[4] The main source of funding is individual donations.[5]

Online presence[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.