M.E. Awareness NZ

M.E. Awareness NZ is a national collective of people with ME, their carers and supporters.

Aims

M.E. Awareness NZ aims to "increase awareness of this debilitating disease and to improve the lives of those affected by it."

Articles or notable studies

• The Art and Science of Pacing for People with ME
• Position Statement on Alternative Medicine and Therapy Programmes Including the Lightning Process or the Switch
• Guidance on Post-exertional Malaise for Clinicians

Interviews and news articles

• Nov 2, 2018, Marcel Robert's view is a darkened room in a rest home: Life with chronic illness ME - Natalie Akoorie for the NZ Herald

Online presence

• Website
• Twitter
• Facebook page
• YouTube channel
• Instagram
• LinkedIn

See also

• New Zealand

Learn more

• M.E. Awareness NZ Website

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.