Lydia Neilson

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Source:Unheard Voices

Lydia Neilson has been the Founder and Chief Executive Officer at the National ME/FM Action Network, Ottawa, Canada, since June 1993. She was instrumental in hosting the 10th International IACFS/ME Research and Clinical Conference held on September 22-25, 2011 in Ottawa, Ontario, Canada. She serves as the editor of Quest, the ME/FM Action Network newsletter.[1]

Ms Neilson developed ME/CFS after an Epstein-Barr virus infection in December 1985, which left her housebound for several years. As she recovered she put her limited energy into advocacy, eventually establishing the National ME/FM Action Network, an organization dedicated to the support, advocacy, education and research of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Fibromyalgia.

Ms Neilson spearheaded the development of the ME and FM Clinical Definitions and Guidelines for Practitioners which has become known as The Canadian Definitions worldwide.

Awards[edit | edit source]

  • 2011, IACFS/ME Special Service Award - for outstanding personal effort and contribution to the CFS/ME community[2]
  • 2011, Governor General's Meritorious Service Medal, Civil Division, in recognition of her achievements that brought benefit or honour to Canada[3]

Talks and interviews[edit | edit source]

Online presence[edit | edit source]

Facebook/National ME/FM Action Network Facebook/Lydia Neilson

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.