Deborah Waroff

Source:ME/CFS Alert

Deborah Waroff co-hosts ME/CFS Alert, a YouTube channel, with Llewellyn King.

She has a bachelors degree with honors in architectural sciences from Harvard College and an MBA degree with honors in finance and international business from New York University. Presently, she is a retired Wall Street energy analyst and an advocate for better treatments and increased government funding for ME/CFS.

In July, 1989, she became sick with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) following a flu-like illness. She has had several partial remissions and relapses. One partial remission was for nine months following a round of tetracycline in 1990. Another partial remission was from 1992 to 2003, which she credits to a combination of pharmaceuticals, including amantadine, thyroid hormones, Pemoline, and Wellbutrin. In September, 2003, she relapsed to being bedbound. In 2005, she started IV ozone treatments, which would improve her health, but every time she stopped, she would relapse. She has urged the Chronic Fatigue Syndrome Advisory Committee for the U.S. Department of Health and Human Services to investigate IV ozone therapy.

Talks and interviews

• 2012, Episode 37 - Deborah Waroff's testimony at Oct 2012 CFSAC meeting
• 2012, Episode 35 - ME/CFS Alert - Patient Perspectives - Deborah Waroff
• 2014, Episode 71 - Deborah Waroff Speaks Out

HHS/CFSAC Testimony

• CFSAC August 2015 Public Comment
• CFSAC January 2015 Public Testimony
• CFSAC October 30, 2009 Public Testimony

Presence Online

• Twitter
• ME/CFS Alert Channel on youtube

Learn more

• Nov 10, 2016, NIH to double funding for chronic fatigue syndrome, but patient distrust remains

See also

• Llewellyn King
• ME/CFS Alert

See myalgic encephalomyelitis.

See chronic fatigue syndrome.

Chronic Fatigue Syndrome Advisory Committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.

See Chronic fatigue syndrome advisory committee.