Citizen Network
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
The Citizen Network or Citizen Network Research, formerly called The Centre for Welfare Reform, is a global community of independent Fellows who are dedicated to equality and diversity.[1] Simon Duffy is the director of the Citizen Network.
Name change[edit | edit source]
The Citizen Network was originally founded in the UK as The Centre for Welfare Reform, and changed to use the current name in 2021.[2]
PACE trial[edit | edit source]
- Dr. Simon Duffy wrote for the Huffington Post The Misleading Research at the Heart of Disability Cuts.
- On April 4, 2016, The Centre for Welfare Reform released a 64-page report In the Expectation of Recovery - Misleading Medical Research and Welfare Reform, written by George Faulkner which outlines how the PACE trial had an impact on disability in the UK. This "powerful report usefully describes many of problems with the PACE research and explores its impact in relation to debates about welfare reform."[3]
- August 19, 2016, Major breakthrough on PACE trial in on the August, 2016 rejection of the appeal brought by Queen Mary University of London which spent £204,787 on outside legal advice for just this one Tribunal; the history of Freedom of Information Requests on "recovery" results claimed by the PACE trial; and some of the pithy quotes by several Professors including the poignant and succinct "This study is a piece of crap." ~ David Tuller.[4]
- March 13, 2017, an article Call for retraction of PACE publication reported on An open letter to Psychological Medicine about "recovery" and the PACE trial which is signed by over 100 medical professionals, researchers, professors, and ME/CFS organizations.[5]
Newsletter[edit | edit source]
They produce a monthly newsletter.
The Citizen Network has republished the article by Mo Stewart From the British Welfare State to Just Another American State which examines the connections between welfare reforms and bogus research.[6]
Notable publications[edit | edit source]
- 2016, In the Expectation of Recovery - Misleading Medical Research and Welfare Reform[3] - (Full text)
- 2020, Energy Impairment and Disability Inclusion: Towards an Advocacy Movement for Energy Limiting Chronic Illness.[7] (Full text)
Online presence[edit | edit source]
See also[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
- ↑ "Copyright | About Us". The Centre for Welfare Reform. Retrieved December 2, 2018.
- ↑ https://citizen-network.org/about
- ↑ 3.0 3.1 Faulkner, George (2016). In the Expectation of Recovery - Misleading Medical Research and Welfare Reform (PDF). The Centre for Welfare Reform. ISBN 978-1-907790-79-9. Retrieved June 29, 2022.
- ↑ Faulkner, George (August 19, 2016). "Major breakthrough on PACE trial". Citizen Network. Retrieved December 2, 2018.
- ↑ "Call for retraction of PACE publication". Citizen Network. March 13, 2017. Retrieved December 2, 2018.
- ↑ "From the British Welfare State to Just Another American State". Citizen Network. Retrieved December 2, 2018.
- ↑ Hale, Catherine; Benstead, Stef; Lyus, Jenny; Odell, Evan; Ruddock, Anna (2020). Energy Impairment and Disability Inclusion: Towards an Advocacy Movement for Energy Limiting Chronic Illness (PDF). Centre for Welfare Reform. ISBN 978-1-912712-25-0.
- ↑ Anderssen, Alex (April 26, 2016). "Centre for Welfare Reform criticises PACE trial". #MEAction. Retrieved December 2, 2018.
