Annette Whittemore

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Annette Whittemore (not to be confused with Vicky Whittemore) is a patient advocate and the mother of a daughter, Andrea Whittemore-Goad, who has been sick with ME since she was a pre-teen.[1] She was fundamental in establishing the research institute Whittemore Peterson Institute.

According to Ms. Whittemore's Linkedin page, her commitment to helping her daughter and others with similar illnesses is well documented:

  • "1989 Began the search for knowledge and treatment for a young daughter's serious illness.
  • 2001: Co-sponsored a CFS Think Tank for physicians and allied health professionals in Reno, Nevada.
  • 2003: Supported amended Assembly Bill 502 in the Nevada State legislature requiring insurance companies in Nevada to provide coverage for medical treatment when part of a clinical trial in phase II, phase III, and phase IV, for patients with cancer and chronic fatigue syndrome (CFS), myalgic encephalomyelitis, ME/CFS.
  • 2004: Co-founded the HHV-6 Foundation
  • 2005: Successfully sought seed funding for a 70 million dollar joint medical research building project for the University of Nevada, Reno, Nevada Cancer Institute and the WPI
  • 2006: Created the Neuro-Immune Research Foundation which became the foundation of support for WPI
  • 2007: Successfully sought additional funding for building and operations for the Whittemore Peterson Institute."[2]

Dr. Daniel Peterson left the Whittemore Peterson Institute in 2010 and returned to private practice.[3]

By 2012, the Whittemore Peterson Institute had become embroiled in controversies, including its research into XMRV.[4]

In 2016, the Whittemore Peterson Institute changed its name to the Nevada Center for Biomedical Research.

In January 2019, due to restructuring of the research program, the center returned to its original name, the Whittemore Peterson Institute.[5]

Awards[edit | edit source]

  • 2006, Health Care Hero Award, Nevada Business Journal[6](p18)
  • 2008, University of Nevada, Alumna of the Year[7]
  • 2009, IACFS/ME Special Service Award - for outstanding personal effort and contribution to the CFS/ME community [8]</ref>
  • 2009, Honorary Doctor of Letters, University of Nevada, Reno[9]

Talks and interviews[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. Johnson, Cort (Apr 20, 2008). "Annette Whittemore and the Making of the Whittemore Peterson Institute in Reno". Prohealth. Retrieved Feb 19, 2020. 
  2. https://www.linkedin.com/in/annette-whittemore-6442071b
  3. "The 'April Surprise'". Phoenix Rising ME / CFS Forums. Retrieved Feb 19, 2020. 
  4. Cohen, Jon (Jan 30, 2012). "Lawsuit Alleges Misuse of Funds by Founders of Whittemore Peterson Institute". Science | AAAS. Retrieved Feb 19, 2020. 
  5. WPI. "NVCBR Latest News". Whittemore Peterson Institute. Retrieved Jan 17, 2019. 
  6. http://www.nevadabusiness.com/issues/NBMAugust2006ViewSUP.pdf
  7. "Whittemore named University's Alumna of the Year". University of Nevada, Reno. Retrieved Feb 21, 2020. 
  8. "IACFS/ME Awardees". IACFS/ME. Retrieved Apr 23, 2020. 
  9. Whittman Institute (Feb 19, 2020). "About | Executive Staff". wpinstitute. 
  10. http://www.investinme.org/IIMEC2.shtml#agenda
  11. "Invest in ME Research - IIMEC4". www.investinme.org. Retrieved Feb 19, 2020. 
  12. "Invest in ME Research - IIMEC5 International ME Conference 2010". www.investinme.org. Retrieved Feb 19, 2020. 
  13. "Invest in ME Research - IIMEC6 International ME Conference 2011". www.investinme.org. Retrieved Feb 19, 2020. 

phase two - A trial involve patients to assess side effects and effectiveness for a particular clinical condition. Typically 100-300 patients.

phase three - Last phase of clinical trials before a drug can be approved for public use. Whereas Phase one assesses basic safety, and Phase two assesses basic efficacy, Phase three uses many trial participants to fully assess both safety and efficacy, and overall benefit/risk.

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.