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[[File:20170811_Guido_den_Broeder.jpg|240px|thumb|right|Photo: Dutch Casting Agency (2017)]]
[[File:20170811_Guido_den_Broeder.jpg|240px|thumb|right|Photo: Dutch Casting Agency (2017)]]
'''Guido den Broeder''' (Den Haag, 28 February 1957) is a Dutch writer, econometrician, politician and chess player. He is a [[myalgic encephalomyelitis]] patient (since 1987) and advocate. He lives in Rotterdam, the [[Netherlands]].
'''Guido den Broeder''' (Den Haag, 28 February 1957) is a Dutch advocate and a [[myalgic encephalomyelitis]] patient (since 1987). He lives in Rotterdam, the [[Netherlands]].


==Career==
==Career==
Den Broeder gained international fame with the development of the macro-econometric model AMO-K, which for some 15 years was used to study a number of strategic policy scenarios for The Netherlands.<ref>1985 J.A.M. Heijke, J. de Koning, R.J.M. Maas, G. den Broeder, "A model of the Dutch Labour Market (AMO-K)", De Economist, 133-4</ref><ref>1988 G. den Broeder, "Alternatieve heffingsgrondslagen voor de sociale zekerheid. Micro-, meso- en macro-economische effecten", Nederlands Economisch Instituut / Magnana Mu Publishing & Research</ref> From 1990-1995, he was a member of the Economic Committee of the Dutch political party GroenLinks.<ref>1993 G. den Broeder, "GroenLinks 1995-1998, Financiële vertaling van het ontwerp-verkiezingsprogramma", Economische Commissie GroenLinks, 2 August</ref> He was a representative in Rotterdam from 1994 to 2002.
Den Broeder developed the macro-econometric model AMO-K, which for some 15 years was used to study a number of strategic policy scenarios for The Netherlands.<ref>1985 J.A.M. Heijke, J. de Koning, R.J.M. Maas, G. den Broeder, "A model of the Dutch Labour Market (AMO-K)", De Economist, 133-4</ref><ref>1988 G. den Broeder, "Alternatieve heffingsgrondslagen voor de sociale zekerheid. Micro-, meso- en macro-economische effecten", Nederlands Economisch Instituut / Magnana Mu Publishing & Research</ref> From 1990-1995, he was a member of the Economic Committee of the Dutch political party GroenLinks.<ref>1993 G. den Broeder, "GroenLinks 1995-1998, Financiële vertaling van het ontwerp-verkiezingsprogramma", Economische Commissie GroenLinks, 2 August</ref> He was a representative in Rotterdam from 1994 to 2002.
   
   
An accomplished chess player, he gained the title of FIDE Master and became champion of the Rotterdam region on two occasions. He finished second in the Dutch Correspondence Chess championship of 1980/81, and authored a number of tournament books.<ref>1994 J. de Hooge, M. de Zeeuw, H. van Bekkum (eds.), "De weg van Kralingen naar CAP VOLMAC Rotterdam. 1924-1994, 70 jaar van een topclub", Rotterdam: Cap Volmac BV, p195-197</ref><ref>2016 Nederlandse Bond van Correspondentieschakers, "Correspondentieschaken in Nederland. 50 Jaar NBC 1966-2016", Gent: Thinkers Publishing, ISBN 978-90-425100-4-4, p116-119</ref>
On 1 April 2015, as a protest move, he declared his Rotterdam home as part of a micronation, Paraduin. This was after The Netherlands denied him welfare and the Dutch court refused to hear his case leaving him without means to survive.<ref>2014 [http://www.mevereniging.nl/rotterdam-weigert-bijstand-aan-voorzitter-me-vereniging/ "Rotterdam weigert bijstand aan voorzitter ME Vereniging"], news item, ME Vereniging Nederland, 13 July</ref><ref>2015 [http://www.paraduin.nl/2015/07/01/weg-uit-nederland/ "Weg uit Nederland"], news item, Paraduin, 1 July</ref>
On 1 April 2015, as a protest move, he declared his Rotterdam home as part of a micronation, Paraduin. This was after The Netherlands denied him welfare and the Dutch court refused to hear his case leaving him without means to survive.<ref>2014 [http://www.mevereniging.nl/rotterdam-weigert-bijstand-aan-voorzitter-me-vereniging/ "Rotterdam weigert bijstand aan voorzitter ME Vereniging"], news item, ME Vereniging Nederland, 13 July</ref><ref>2015 [http://www.paraduin.nl/2015/07/01/weg-uit-nederland/ "Weg uit Nederland"], news item, Paraduin, 1 July</ref>


Den Broeder was an executive producer of the action thriller ''The Russian Bride'', released in 2019. It features a desparate father going to extreme lengths to find a cure for his son, who suffers from a [[mitochondria]]l disease.<ref>2018 [http://www.paraduin.nl/2018/12/18/the-russian-bride-comes-to-porto/ The Russian Bride comes to Porto], news item, Paraduin, 18 December</ref> He also wrote the sciencefiction/fantasy novel ''Bellerophon'', about a young man with brain damage who has to find his way in a strange world to fulfil a heroic destiny.
Den Broeder was an executive producer of the film ''The Russian Bride'', released in 2019. It features a desperate father going to extreme lengths to find a cure for his son, who suffers from a [[Mitochondrion|mitochondria]]l disease.<ref>2018 [http://www.paraduin.nl/2018/12/18/the-russian-bride-comes-to-porto/ The Russian Bride comes to Porto], news item, Paraduin, 18 December</ref>  


==Advocacy==
==Advocacy==
On May 12, 1987, Den Broeder fell ill with myalgic encephalomyelitis, and never recovered. The diagnosis arrived at his house while he was playing a chess tournament in Hungary in 1990, where he succumbed to exhaustion halfway the event.<ref>2009 [http://www.chessgames.com/perl/chessplayer?pid=94920 "The chess games of Guido den Broeder"], comment, Chessgames.com, 19 April</ref> During the years that followed, he tried but failed to receive [[disability benefits]], despite having been fully insured.
On May 12, 1987, Den Broeder fell ill with myalgic encephalomyelitis, and never recovered. The diagnosis arrived at his house while he was playing a chess tournament in Hungary in 1990, where he succumbed to exhaustion halfway the event.<ref>2009 [http://www.chessgames.com/perl/chessplayer?pid=94920 "The chess games of Guido den Broeder"], comment, Chessgames.com, 19 April</ref> During the years that followed, he tried but failed to receive [[disability benefits]], despite having been fully insured.<ref>De Volkskrant (2003), [https://www.volkskrant.nl/nieuws-achtergrond/wao-geen-verzekering-tegen-ziekte~bb1386c8/ "WAO geen verzekering tegen ziekte"], 23 May</ref>


In a letter to GroenLinks chairman Ab Harrewijn, 1996, Den Broeder asked for political attention to the plight of ME patients in the Netherlands.<ref>1996 G. den Broeder, letter to Ab Harrewijn, 14 February</ref> A budget of € 2.72 million (6 million gulden) was eventually set aside by Dutch parliament for biomedical research into ME. However, after the Gezondheidsraad produced an advice on [[Chronic Fatigue Syndrome]] (CFS) in 2005, the money was squandered on studies into [[cognitive behavioural therapy]] (CBT) and [[graded exercise therapy]] (GET) for CFS patients.
In a letter to GroenLinks chairman Ab Harrewijn, 1996, Den Broeder asked for political attention to the plight of ME patients in the Netherlands.<ref>1996 G. den Broeder, letter to Ab Harrewijn, 14 February</ref> A budget of € 2.72 million (6 million gulden) was eventually set aside by Dutch parliament for biomedical research into ME. However, after the Gezondheidsraad produced an advice on [[Chronic Fatigue Syndrome]] (CFS) in 2005, the money was spent on studies into [[cognitive behavioral therapy]] (CBT) and [[graded exercise therapy]] (GET) for CFS patients.


In 2004 Den Broeder was one of the leaders of a patient revolt against the board of the government-subsidized [[ME/CVS-Stichting Nederland]], which denied ME and CFS patients influence on the foundation's positions and activities. To give patients a voice and counter the foundation's propaganda of CBT/GET, he co-founded the [[ME en CVS Vereniging]] in 2005, later renamed to ME/CVS Vereniging. As a chairmain (two periods) and [[guideline]] representative, he educated patients and doctors about the difference between ME and CFS. He furthermore criticised the publications of the Dutch Health Council and the decisions of the Dutch minister of health.
In 2004 Den Broeder was one of the leaders of a patient revolt against the board of the government-subsidized [[ME/CVS-Stichting Nederland]], which denied ME and CFS patients influence on the foundation's positions and activities. To give patients a voice and counter the foundation's propaganda of CBT/GET, he co-founded the [[ME en CVS Vereniging]] in 2005, later renamed to ME/CVS Vereniging. As a chairmain (two periods) and [[guideline]] representative, he educated patients and doctors about the difference between ME and CFS. He furthermore criticised the publications of the Dutch Health Council and the decisions of the Dutch minister of health.{{Citation needed|reason=}}


When in 2011 the [[International Consensus Criteria]] for ME were published and CFS got classified away from ME in the [[ICD10-CM]] (published in 2015), the decision was made to disband the ME/CVS Vereniging. Den Broeder founded the [[ME Vereniging Nederland]], the national patient organization for [[ME]] in the Netherlands. He has served as chairman until this day. Also in 2011, he founded and became president of the [[Stichting ME Research]], a foundation whose purpose is to conduct, promote and interpret research into myalgic encephalomyelitis. He initiated several ongoing projects, including ''Wetenschap voor Patiënten'' ([[Science for Patients]]). Den Broeder's YouTube channel [[DossierME]] shows presentations and interviews from that project.
When in 2011 the [[International Consensus Criteria]] for ME were published and CFS got classified away from ME in the [[ICD10-CM]] (published in 2015), the decision was made to disband the ME/CVS Vereniging. Den Broeder founded the [[ME Vereniging Nederland]], the national patient organization for [[myalgic encephalomyelitis|ME]] in the Netherlands. He has served as chairman until this day. Also in 2011, he founded and became president of the [[Stichting ME Research]], a foundation whose purpose is to conduct, promote and interpret research into myalgic encephalomyelitis. He initiated several ongoing projects, including ''Wetenschap voor Patiënten'' ([[Science for Patients]]). Den Broeder's YouTube channel [[DossierME]] shows presentations and interviews from that project.


Den Broeder is a [[basic income]] advocate,<ref>1991 G. den Broeder, A. de Roo, "Basisinkomen - omdat het kan", GroenLinks</ref> and served as a board member of the Vereniging Basisinkomen for 13 years. On several occasions he has suggested that ME patients would profit from the introduction of a basic income, leaving behind the unfavorable lottery that the current system for disability benefits has to offer. Findings by the Stichting ME Research indicate that half of the ME patients in The Netherlands have no or insufficient income.
Den Broeder is a [[basic income]] advocate,<ref>1991 G. den Broeder, A. de Roo, "Basisinkomen - omdat het kan", GroenLinks</ref> and served as a board member of the Vereniging Basisinkomen for 13 years. On several occasions he has suggested that ME patients would profit from the introduction of a basic income, leaving behind the 'unfavorable lottery' that the current system for disability benefits has to offer. Findings by the Stichting ME Research indicate that half of the ME patients in The Netherlands have no or insufficient income.


Together with [[Wendy Boutilier]] and [[John Gabor]], Den Broeder founded the international group [[Global Advocates for Myalgic Encephalomyelitis]] in 2016. GAME supports the application of the [[International Consensus Criteria]] for ME.
Together with [[Wendy Boutilier]] and [[John Gabor]], Den Broeder founded the international group [[Global Advocates for Myalgic Encephalomyelitis]] in 2016. GAME supports the application of the International Consensus Criteria for ME.


==Education==
==Education==
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*2014 [http://www.meresearch.nl/PDF/20140208_STMER_DEPME_Overzicht_2012-2013.pdf "Doorlopende Enquête Patiёntenperspectief 2012-2013"], Stichting ME Research, 8 February
*2014 [http://www.meresearch.nl/PDF/20140208_STMER_DEPME_Overzicht_2012-2013.pdf "Doorlopende Enquête Patiёntenperspectief 2012-2013"], Stichting ME Research, 8 February
*2014 [http://www.mevereniging.nl/PDF/20140329_MEVN_StandvanZaken.pdf "De postvirale hersenaandoening Myalgische Encefalomyelitis. Stand van zaken 2014"], ME Vereniging Nederland, 29 March
*2014 [http://www.mevereniging.nl/PDF/20140329_MEVN_StandvanZaken.pdf "De postvirale hersenaandoening Myalgische Encefalomyelitis. Stand van zaken 2014"], ME Vereniging Nederland, 29 March
*2014 "Multidisciplinaire Richtlijn Myalgische Encefalomyelitis (preconcept)", Stichting ME Research, 6 May
*2015 "NIH: 'Pathways to Prevention: Advancing the Research on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome' (draft)", comments, ME Vereniging Nederland, 16 January
*2015 "NIH: 'Pathways to Prevention: Advancing the Research on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome' (draft)", comments, ME Vereniging Nederland, 16 January
*2015 [http://www.mevereniging.nl/PDF/20150127_MEVN_TipsNieuwePatienten.pdf "Tips voor nieuwe ME-patiënten"], ME Vereniging Nederland, 27 January
*2015 [http://www.mevereniging.nl/PDF/20150127_MEVN_TipsNieuwePatienten.pdf "Tips voor nieuwe ME-patiënten"], ME Vereniging Nederland, 27 January
*2015 "Antwoord op vragen van de Gezondheidsraad", letter, ME Vereniging Nederland, 14 August
*2015 "Antwoord op vragen van de Gezondheidsraad", letter, ME Vereniging Nederland, 14 August
*2015 [http://www.meresearch.nl/PDF/20150909_STMER_DEPME_Overzicht_2012-2014.pdf "Doorlopende Enquête Patiёntenperspectief 2012-2014"], Stichting ME Research, 9 September
*2015 [http://www.meresearch.nl/PDF/20150909_STMER_DEPME_Overzicht_2012-2014.pdf "Doorlopende Enquête Patiёntenperspectief 2012-2014"], Stichting ME Research, 9 September
*2015 "Myalgische Encephalomyelitis (ME)", De Hersenen, MediaPlanet, 16 September
*2015 [http://www.mijn-lichaam.com/organen-en-weefsel/brein/myalgische-encefalomyelitis-me "Myalgische Encephalomyelitis (ME)"], Mijn Lichaam, MediaPlanet, 16 September
*2018 [https://www.seniorenwijzer.eu/gezondheidsraad-zet-me-patienten-op-zijspoor/ "Gezondheidsraad zet ME-patiënten op zijspoor"], SeniorenWijzer, Spring
*2018 [https://www.seniorenwijzer.eu/gezondheidsraad-zet-me-patienten-op-zijspoor/ "Gezondheidsraad zet ME-patiënten op zijspoor"], SeniorenWijzer, Spring
*2019 [https://www.seniorenwijzer.eu/myalgische-encefalomyelitis-postvirale-hersenziekte "Blijft de ziekte ME een ondergeschoven kindje?"], SeniorenWijzer, Summer, p24-25
*2019 [https://www.seniorenwijzer.eu/myalgische-encefalomyelitis-postvirale-hersenziekte "Blijft de ziekte ME een ondergeschoven kindje?"], SeniorenWijzer, Summer, p24-25
Line 81: Line 80:
*2017 [http://www.mevereniging.nl/PDF/20170221_Visiedocument.pdf "De stem van de patiënten en hun organisaties gehoord. Drie pleidooien aan de politiek van ruim 5 miljoen mensen met een aandoening"], PatiëntenPerspectief 2021, 21 February
*2017 [http://www.mevereniging.nl/PDF/20170221_Visiedocument.pdf "De stem van de patiënten en hun organisaties gehoord. Drie pleidooien aan de politiek van ruim 5 miljoen mensen met een aandoening"], PatiëntenPerspectief 2021, 21 February


==Online Presence==
==Online presence==
*[http://www.mevereniging.nl/ ME Vereniging Nederland]
*[http://www.meresearch.nl/ Stichting ME Research]
*[https://artzstudios1.wixsite.com/globaladvocatesmeicc Global Advocates for ME]
*[https://www.youtube.com/channel/UCcLGoYlJgzJTVeHmGwhf_XA DossierME] (YouTube)
*[https://www.youtube.com/channel/UCcLGoYlJgzJTVeHmGwhf_XA DossierME] (YouTube)
*[https://nl.linkedin.com/in/guido-den-broeder-b4b39926 LinkedIn]
*[https://nl.linkedin.com/in/guido-den-broeder-b4b39926 LinkedIn]
*[http://www.paraduin.nl/ Paraduin]
*[http://www.bellerophon.paraduin.nl Bellerophon]


==Learn more==
==See also==
*[https://ratings.fide.com/card.phtml?event=1000519 FIDE]
* [[Global Advocates for Myalgic Encephalomyelitis]]
*[https://www.imdb.me/guidodenbroeder IMDb]
* [[ME Vereniging Nederland]]
*[http://nl.wikisage.org/wiki/Guido_den_Broeder Wikisage]
* [[Stichting ME Research]]


==References==
==References==
{{reflist}}
{{reflist}}


{{DEFAULTSORT:Broeder, Guido den}}
[[Category:Dutch advocates or allies]]
[[Category:Dutch advocates or allies]]
[[Category:Researchers]]
[[Category:Researchers]]
[[Category:People with ME]]
[[Category:People with ME, CFS, and/or FMS]]

Latest revision as of 22:59, April 13, 2022

Photo: Dutch Casting Agency (2017)

Guido den Broeder (Den Haag, 28 February 1957) is a Dutch advocate and a myalgic encephalomyelitis patient (since 1987). He lives in Rotterdam, the Netherlands.

Career[edit | edit source]

Den Broeder developed the macro-econometric model AMO-K, which for some 15 years was used to study a number of strategic policy scenarios for The Netherlands.[1][2] From 1990-1995, he was a member of the Economic Committee of the Dutch political party GroenLinks.[3] He was a representative in Rotterdam from 1994 to 2002.

On 1 April 2015, as a protest move, he declared his Rotterdam home as part of a micronation, Paraduin. This was after The Netherlands denied him welfare and the Dutch court refused to hear his case leaving him without means to survive.[4][5]

Den Broeder was an executive producer of the film The Russian Bride, released in 2019. It features a desperate father going to extreme lengths to find a cure for his son, who suffers from a mitochondrial disease.[6]

Advocacy[edit | edit source]

On May 12, 1987, Den Broeder fell ill with myalgic encephalomyelitis, and never recovered. The diagnosis arrived at his house while he was playing a chess tournament in Hungary in 1990, where he succumbed to exhaustion halfway the event.[7] During the years that followed, he tried but failed to receive disability benefits, despite having been fully insured.[8]

In a letter to GroenLinks chairman Ab Harrewijn, 1996, Den Broeder asked for political attention to the plight of ME patients in the Netherlands.[9] A budget of € 2.72 million (6 million gulden) was eventually set aside by Dutch parliament for biomedical research into ME. However, after the Gezondheidsraad produced an advice on Chronic Fatigue Syndrome (CFS) in 2005, the money was spent on studies into cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for CFS patients.

In 2004 Den Broeder was one of the leaders of a patient revolt against the board of the government-subsidized ME/CVS-Stichting Nederland, which denied ME and CFS patients influence on the foundation's positions and activities. To give patients a voice and counter the foundation's propaganda of CBT/GET, he co-founded the ME en CVS Vereniging in 2005, later renamed to ME/CVS Vereniging. As a chairmain (two periods) and guideline representative, he educated patients and doctors about the difference between ME and CFS. He furthermore criticised the publications of the Dutch Health Council and the decisions of the Dutch minister of health.[citation needed]

When in 2011 the International Consensus Criteria for ME were published and CFS got classified away from ME in the ICD10-CM (published in 2015), the decision was made to disband the ME/CVS Vereniging. Den Broeder founded the ME Vereniging Nederland, the national patient organization for ME in the Netherlands. He has served as chairman until this day. Also in 2011, he founded and became president of the Stichting ME Research, a foundation whose purpose is to conduct, promote and interpret research into myalgic encephalomyelitis. He initiated several ongoing projects, including Wetenschap voor Patiënten (Science for Patients). Den Broeder's YouTube channel DossierME shows presentations and interviews from that project.

Den Broeder is a basic income advocate,[10] and served as a board member of the Vereniging Basisinkomen for 13 years. On several occasions he has suggested that ME patients would profit from the introduction of a basic income, leaving behind the 'unfavorable lottery' that the current system for disability benefits has to offer. Findings by the Stichting ME Research indicate that half of the ME patients in The Netherlands have no or insufficient income.

Together with Wendy Boutilier and John Gabor, Den Broeder founded the international group Global Advocates for Myalgic Encephalomyelitis in 2016. GAME supports the application of the International Consensus Criteria for ME.

Education[edit | edit source]

  • 1981 Drs in econometrics, Erasmus University Rotterdam

Interviews & Talks[edit | edit source]

Publications[edit | edit source]

Myalgic encephalomyelitis[edit | edit source]

Chronic Fatigue Syndrome[edit | edit source]

  • 2006 "Advies inzake het ZonMW-Onderzoeksprogramma Chronisch Vermoeidheids Syndroom", ME/CVS Vereniging,
  • 2006 "E. van de Putte, 'Exploring Chronic Fatigue Syndrome in Adolescents' (proefschrift)", book review, Lees ME 1, December, p42-45
  • 2007 "Gezondheidsraad, 'Verzekeringsgeneeskundig protocol Chronische-vermoeidheidssyndroom'", book review, LeesME 2, May, p44-45
  • 2007 "Advies aan ZonMw inzake de tweede ronde van het Onderzoeksprogramma CVS", May
  • 2007 "NICE Guideline", review, Lees ME 3, October, p32-35
  • 2009 "Chronischevermoeidheidssyndroom: een psychoneuro-immunologisch perspectief", comments, Tijdschrift voor Psychiatrie, October, p786-787
  • 2010 "Het chronisch vermoeidheidssyndroom. De beoordeling door verzekeringsartsen", included comments, Inspectie Werk en Inkomen, Ministerie van Sociale Zaken en Werkgelegenheid, November
  • 2012 "Commentaar op het concept van de CBO-richtlijn CVS", ME Vereniging Nederland, 12 April

Patient advocacy[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. 1985 J.A.M. Heijke, J. de Koning, R.J.M. Maas, G. den Broeder, "A model of the Dutch Labour Market (AMO-K)", De Economist, 133-4
  2. 1988 G. den Broeder, "Alternatieve heffingsgrondslagen voor de sociale zekerheid. Micro-, meso- en macro-economische effecten", Nederlands Economisch Instituut / Magnana Mu Publishing & Research
  3. 1993 G. den Broeder, "GroenLinks 1995-1998, Financiële vertaling van het ontwerp-verkiezingsprogramma", Economische Commissie GroenLinks, 2 August
  4. 2014 "Rotterdam weigert bijstand aan voorzitter ME Vereniging", news item, ME Vereniging Nederland, 13 July
  5. 2015 "Weg uit Nederland", news item, Paraduin, 1 July
  6. 2018 The Russian Bride comes to Porto, news item, Paraduin, 18 December
  7. 2009 "The chess games of Guido den Broeder", comment, Chessgames.com, 19 April
  8. De Volkskrant (2003), "WAO geen verzekering tegen ziekte", 23 May
  9. 1996 G. den Broeder, letter to Ab Harrewijn, 14 February
  10. 1991 G. den Broeder, A. de Roo, "Basisinkomen - omdat het kan", GroenLinks