Talk:Severe and very severe ME

layout

I think it would be best to aim for a clean layout on this page - larger images and less of them. Possibly with some charts / infographics and bullet points for key info at the top for those less able to read.

Linda Crowhurst's YouTube video is helpful I think.

Photos of those with severe M.E. may be best in a scrollable gallery - see NHS for example.

Recovery section seems worthwhile - a small number do recover.

Unrest would be a good resource to add.

Njt notjusttired (talk) 09:16, 20 October 2018 (EDT)

I did do a scrollable gallery (I hate creating them, they are a pain) but not certain it is necessary on this page. I did it on the Ehlers-Danlos syndrome page because I had to fit the different types into a section. But, if you feel it would be better as a scrollable gallery you can copy the "template" from the EDS page. Careful placing the caption information into the template, that is the biggest pain of all.

All other information would be added easily, you may have done so already, didn't look close enough yet.

Yes, chronological order is earlier to the latest. I thought that was odd when I first started editing but it is, in fact, the way it is done. Kmdenmark? did a lot of correcting on many pages and I helped a little because most pages were entered latest to earlies. --MEcfsFMS (talk) 10:24, 20 October 2018 (EDT)

Images should not be put along side bullets because this causes issues with the layout on small screens ~Njt (talk) 20:20, March 3, 2020 (EST)

Content to add

These are now in the Notable studies but not included in the page content:

• McDermott C. (2014) What is the current NHS service provision for patients severely affected by chronic fatigue syndrome/myalgic encephalomyelitis? A national scoping exercise.
• Pendergrast T, et al. (2016) Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome. Chronic Illness. (Epub ahead of print).
• Pheby D and Saffron L. (2009) Risk factors for severe ME/CFS.

~Njt (talk) 20:20, March 3, 2020 (EST)

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.