Talk:Epidemiology of myalgic encephalomyelitis and chronic fatigue syndrome
Quality of Life / Severity[edit source | reply | new]
Add these to QoL / severity section:
http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421 Canadian Community Health Survey (Statistics Canada). 2015
And https://www.dovepress.com/chronic-fatigue-syndrome-and-quality-of-life-peer-reviewed-article-PROM ? Ollie (talk) 06:05, 1 September 2018 (EDT)
Additional useful citations:
This is a most severe illnesses in terms of impact on the patient, as indicated by multiple quality of life / sickness impact studies. For example, US infectious diseases specialist Philip Peterson and team employed the ‘Medical Outcome Study’ to measure physical suffering, with a maximum score of one hundred representing best health. ‘CFS’ patients in Peterson's clinic scored, on average, 16. Presenting findings, Peterson said "We really haven't seen anything like it with respect to the other medical illness," adding that he had needed to engage an artist to redesign the morbidity graph for the slide presented, since no other category of patients had ever scored so low.
SOURCE: Hillary Johnson; Osler's Web 1996; Peterson research published as: Peterson PK, Schenck CH, Sherman R. Chronic fatigue syndrome in Minnesota. Minnesota Med 1991 ;74: 21-26.
It should be noted that the most severely affected patients are bedbound, tube-fed because they are unable to swallow, unable to speak or to tolerate light, sound or touch.
Regarding prognosis, there is no age group for whom ‘complete recovery’ is the norm. Indeed we are not aware of a single documented case of recovery to the point where life is not at all restricted by this illness. To cite published findings, a systematic review of 14 studies found:
a median full recovery rate during the follow up periods of 7%
that only a minority of participants had improved at all over the study period - the median proportion of patients who improved during follow up being 39.5%.
SOURCE: Carruthers, B. et al. Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols Journal of Chronic Fatigue Syndrome, Vol. 11 (1) 2003, pp7-115; citing: Cairns R & Hotopf M A systematic review describing the prognosis of chronic fatigue syndrome Occupational Med, 2005, 55, 20-31.
There are some epidemiological studies on the notable studies page: http://www.me-pedia.org/index.php?title=Notable_Studies Olliec (talk) 08:51, 30 November 2015 (PST)
Removed reference that cited Dr. Unger's CDC Grand Rounds for statistics on unemployment. She gave no statistics on percentage of patients who do or do not work during that presentation. Kmdenmark (talk) 12:55, 18 Apr 2018 (EST)
